Palliative and End of Life Care Neglected Across England

Palliative and end of life care may not be a priority across England despite the health care challenges posed by a rapidly ageing population, a study at King’s College London finds. The research is based on an analysis of the Health and Wellbeing Strategies of 150 local authorities across England, which found that only 4 percent cited end of life care as a priority.

Palliative care is defined as the active total care of patients whose disease is not responsive to curative treatment, with the control of pain, of other symptoms, and of psychological, social and spiritual problems paramount.

The goal of palliative care is to achieve the best possible quality of life for patients and their families. Many aspects of palliative care are also applicable earlier in the course of the illness.

As the population ages, the need for effective palliative care strategies that are fit for purpose has never been greater - research suggests that the demand for palliative care will increase by 42 percent by 2040

. To understand how England's 152 local authorities - whose regional Health and Wellbeing Boards are responsible for improving health and care - prioritize end of life care, researchers systematically analyzed their Health and Wellbeing Strategies published from 2012 onwards. In two areas neighboring Health and Wellbeing Boards developed a joint strategy, making the total number of strategies analyzed 150.

Specific measures linked to end of life care were assessed, including; the level of prioritization of end of life care; whether end of life care was referenced within a specific clinical context - such as in relation to cancer or dementia; whether a target for improvement was identified; and whether a specific intervention for improving end of life care was present.

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Researchers found that of the 150 strategies identified, end of life care was mentioned in just over half 78 (52 percent) and prioritized in only six (4 percent).

In 43 of the 78 strategies, end of life care was mentioned in connection with specific medical conditions, with ageing and dementia the most cited.

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The King's team also found that there was a sparse use of evidence in relation to end of life care, particularly with respect to the effectiveness of interventions. With budgets for specialist palliative care services ranging from £51.83 to £2,329 per patient per annum across England, being able to provide robust evidence about the effectiveness of treatments could have a bearing both on provision and budgets.

Lead author Dr Katherine Sleeman, from King's College London's Cicely Saunders Institute for Palliative Care, Policy & Rehabilitation said: 'This is the first study to systematically analyze content relating to end of life care within local health care strategies and provides a comprehensive national picture of priorities and plans.

"What we found is that while half of Health and Wellbeing Strategies mention end of life care, few prioritize it, and none cite evidence for effective interventions This is concerning, especially as end of life care has been highlighted as a priority for policy makers nationally and internationally.

'This research highlights the large variations in the prioritization of palliative and end of life care across England and underscores the need for greater scrutiny of local health and care strategies to avoid the unintended creation of a palliative care post code lottery.'

The study is published in the journal Palliative Medicine.

Source-Eurekalert