Multiple Sclerosis -
Support Groups

UNITED KINGDOM

England

Gerson Support Group
P O Box 406
Esher
Surrey KT10 9UL
7 days a week telephone helpline:
01372 464 557
http://gersonsupportgroup.org.uk/

The Multiple Sclerosi Society of
Great Britain and Northern Ireland
MS Society
MS National Centre
372 Edgware Road
London
NW2 6ND
Tel: 020 8438 0700
Fax: 020 8438 0701
http://www.mssociety.org.uk/

Multiple Sclerosis Trust
Spirella Building
Bridge Road
Letchworth Garden City
Hertfordshire
SG6 4ET
Tel: 01462 476700
Fax: 01462 476710
Email: [email protected]
http://www.mstrust.org.uk

Aber Branch of the Multiple
Sclerosis Society
The Stuart Resource Centre
Long Walk Road
Mastrick
Aberdeen
AB16 5QQ
Telephone: 01224 692777
Fax: 01224 693861
e-mail: [email protected]
http://www.ms-aberdeen.org.uk/

The Multiple Sclerosis Resource Centre
7 Peartree Business Centre,
Peartree Road,
Stanway,
Colchester,
Essex
CO3 0JN
http://www.msrc.co.uk

Friends with MS
Friends with MS
411 Radcliffe Street
Bristol, Pa. 19007
http://www.friendswithms.com/
support.htm

Multiple Sclerosis International Federation
3rd Floor
Sky Line House
200 Union Street
London
SE1 0LX
Tel: 020 7620 1911
Fax: 020 7620 1922
Web: www.msif.org
Best time to telephone: 9am - 5pm,
Monday - Friday.

Scotland

National Office
Ratho Park
88 Glasgow Road
Ratho Station
Newbridge
EH28 8PP
Tel: 0131 335 4050
Fax: 0131 335 4051
http://www.mssocietyscotland
.org.uk/
index.html

Multiple Sclerosis Therapy Centre
Support and Counselling
Liz Armour
Duncrievie House
College Road
Methven
Perth, PH1 3PB
01738 840357
[email protected]
http://www.mstherapycentres
.org.uk/support.html

Wales

Multiple Sclerosis Society
Wales/Cymru
Temple Court
Cathedral Road
Cardiff
CF11 9HA
Tel: 029 2078 6676
Fax: 029 2078 6677
http://www.mssociety.org.uk
/wales/index.html

Northern Ireland

The Resource Centre
34 Annadale Avenue
Belfast
BT7 3JJ
Tel: 02890 802 802
http://www.mssocietyni.
co.uk/index.html

Multiple Sclerosis Society Northern Ireland
34 Annadale Avenue
Belfast
BT7 3JJ
Tel: 028 9080 2802
Fax: 028 9080 2803
Web: www.mssocietyni.co.uk
Best time to telephone: 9am - 5pm, Monday - Friday.

Brain and Spine Foundation
7 Winchester House Kennington
Park Cranmer Road

London

SW9 6EJ
Tel (helpline): 0808 808 1000
(run by neurosciences nurses)
Tel (office): 020 7793 5900
Fax: 020 7793 5939
Web: www.brainandspine.org.uk
Best time to telephone: helpline: 9am - 1pm,
Monday - Friday. Office: normal office hours

The British Home
Crown Lane
London
SW16 3JB
Tel: 020 8670 8261
Fax: 020 8766 6084
Best time to telephone : 9.00am - 5.00pm,
Monday - Friday.
Web: www.britishhome.org.uk

British Trust for the Myelin Project
139 Hulme Hall Road
Cheadle Hulme
Stockport
SK8 6LQ
Tel: 0161 292 3191
Web: www.myelinproject.co.uk

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Consult Neurologist Online

terrica-wisner

i was researching about autoimmune diseases[Multiple Sclerosis to be specific] and current health tech to help curb/manage it and i found this website ww w. naturalherbscentre. com It made a tremendous difference for me I had improved walking balance, muscle strength and improved vision, always thankful for nature that helps in managing these terrible diseases. I???m active now, I can personally vouch for these remedy but you would probably need to decide what works best for you????.

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michele-garvey

After an MRI i was diagnosed of MULTIPLE SCLEROSIS. After years on medications, symptoms worsened with tremors on my right hand, numbness and tingling, muscle weakness and loss of speech. Fortunately last year, i learnt about Health Herbs Clinic and their Multiple Sclerosis alternative treatment [ww w. healthherbsclinic. com], the Multiple Sclerosis treatment made a great difference, most of my symptoms including tremors, weakness and others gradually disappeared. I improved greatly over the 6 months treatment, its been a years since the treatment, i have no symptoms. I have a very good quality of life and a supportive family!

shaik92

hii, Me interested in seeking hsct[stem cell transplant] from India.me with rrms 5years post disease activity.Any one who has ms in India would be pyscological help for me.Please responds. Regards shaik

LeoVoisey

Chronic cerebrospinal venous insufficiency [CCSVI], or the pathological restriction of venous vessel discharge from the CNS has been proposed by Zamboni, et al, as having a correlative relationship to Multiple Sclerosis. From a clinical perspective, it has been demonstrated that the narrowed jugular veins in an MS patient, once widened, do affect the presenting symptoms of MS and the overall health of the patient. It has also been noted that these same veins once treated, restenose after a time in the majority of cases. Why the veins restenose is speculative. One insight, developed through practical observation, suggests that there are gaps in the therapy protocol as it is currently practiced. In general, CCSVI therapy has focused on directly treating the venous system and the stenosed veins. Several other factors that would naturally affect vein recovery have received much less consideration. As to treatment for CCSVI, it should be noted that no meaningful aftercare protocol based on evidence has been considered by the main proponents of the ???liberation??? therapy (neck venoplasty). In fact, in all of the clinics or hospitals examined for this study, patients weren???t required to stay in the clinical setting any longer than a few hours post-procedure in most cases. Even though it has been observed to be therapeutically useful by some of the main early practitioners of the ???liberation??? therapy, follow-up, supportive care for recovering patients post-operatively has not seriously been considered to be part of the treatment protocol. To date, follow-up care has primarily centered on when vein re-imaging should be done post-venoplasty. The fact is, by that time, most patients have restenosed (or partially restenosed) and the follow-up Doppler testing is simply detecting restenosis and retrograde flow in veins that are very much deteriorated due to scarring left by the initial procedure. This article discusses a variable approach as to a combination of safe and effective interventional therapies that have been observed to result in enduring venous drainage of the CNS to offset the destructive effects of inflammation and neurodegeneration, and to regenerate disease damaged tissue.

Emma1968

I've was diagnosed with primary progressive ms last week. I've. Had no remissions at all I just get worse. I walk with crutches and suffer extreme exhaustion. I'm currently on a 5 day course of methylphenidate 500mg. I'm fed up of people saying think positively . I can think of nothing to be positive about. My old life has gone and I can't accept this new life. Infant it's not a life it's and existence . I feel a burden to my fianc?? and extremely guilty to my children. I have a 5 moth grandson who I can no longer pick up. I'm so so sad. No one understands. My whole family is distraught and I blame myself. I think they'll all be better off without me. Does anybody understand or am I being selfish?

BellaLuna

I am so sorry you feel that way. I too have MS and have been devastated emotionally by the burden but things will change as they always do, so you need to ride the roller coaster for as long as life lets you. No one is ever better off without someone they love!