Multiple Sclerosis -
Support Groups

AUSTRALIA

MS Society of Queensland
286 Gladstone Road
DUTTON PARK QLD 4102
Postal Address:
Locked Bag 370
COORPAROO DC QLD 4151
Telephone: (07) 3840 0888
Fax: (07) 3840 0813
Email: [email protected]
http://www.msaustralia.org.au

Multiple Sclerosis Society of the ACT
Gloria McKerrow House
117, Denison Street
Deakin ACT 2600
Australia
Phone: (02) 6285 2999 (Local)
+61 2 6285 2999 (International)
Fax: (02) 6281 0817 (Local)
+61 2 6281 0817 (International)
E-mail: [email protected].
http://www.ms.org.au/

MS Australia
PO Box 210, Lidcombe NSW 1825
PH: 02 9646 0600 FAX: 02 9646 0675
WEB Site: www.msaustralia.org.au

Multiple Sclerosis Research Australia Limited
PO Box 1246, Chatswood NSW 2057
PH: 02 9411 7811 FAX: 02 9411 7456
WEB Site: www.msra.org.au

Multiple Sclerosis Limited (NSW & Vic.)
54 Railway Road, Blackburn VIC 3130
(Registered Office)
PH: 03 9845 2700 FAX: 03 9845 2888
NSW: PO Box 210, Lidcombe NSW 1825
PH: 02 9646 0600 FAX: 02 9646 0675
http://mssociety.org.au/

MS South Australia/Northern Territory
PO Box 198, Greenacres SA 5086
PH: 08 8360 0800 FAX: 08 8360 0899

MS Tasmania
15 Princes Street (Locked Bag 4),
Sandy Bay TAS 7005
PH: 03 6224 4111 FAX: 03 6224 4222

MS Western Australia
Locked Bag 2, Bentley Delivery Centre,
Bentley WA 6983
PH: 08 9365 4888 FAX: 08 9451 4453
[email protected]
http://www.multiple-wa.asn.au/

The Brain Foundation
National and New South Wales Office
Gerald Edmunds, National Executive Director
Tel: + 61 2 9437 5967
Fax: + 61 2 9437 5978
Email: [email protected]
Website: www.brainaustralia.org.au
P O Box 579, Crows Nest, NSW 1585
Suite 21, Regent House, 37-43 Alexander Street,
Crows Nest, NSW 2065

Brain Foundation Victoria Ltd
Tel: + 61 3 9905 3950
Fax: + 61 3 9905 3948
Email: brain.foundation.spppm@
med.monash.edu.au
Website: www.brainfoundation.org.au

C/o School of Psychology, Psychiatry and
Psychological Medicine, Level 4, Building
17 Monash University CLAYTON VIC 3800
President: Associate Professor Stephen Robinson

Brain Foundation South Australia
Tel: +61 8 8223 3758
Fax: +61 8 8224 0988
Email: [email protected]
Website: as National
250 Flinders Street, Adelaide, South Australia, 5000
Lisa Taplin, South Australian Executive Director

Brain Foundation Tasmania
Tel: + 61 3 6231 4424
Fax: + 61 3 6234 3442
Email: [email protected]
Industry House, 30 Burnett Street,
North Hobart, 7002
PO Box 527, North Hobart, 7002
Connie Digolis. Manager, Tasmania

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terrica-wisner

i was researching about autoimmune diseases[Multiple Sclerosis to be specific] and current health tech to help curb/manage it and i found this website ww w. naturalherbscentre. com It made a tremendous difference for me I had improved walking balance, muscle strength and improved vision, always thankful for nature that helps in managing these terrible diseases. I???m active now, I can personally vouch for these remedy but you would probably need to decide what works best for you????.

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michele-garvey

After an MRI i was diagnosed of MULTIPLE SCLEROSIS. After years on medications, symptoms worsened with tremors on my right hand, numbness and tingling, muscle weakness and loss of speech. Fortunately last year, i learnt about Health Herbs Clinic and their Multiple Sclerosis alternative treatment [ww w. healthherbsclinic. com], the Multiple Sclerosis treatment made a great difference, most of my symptoms including tremors, weakness and others gradually disappeared. I improved greatly over the 6 months treatment, its been a years since the treatment, i have no symptoms. I have a very good quality of life and a supportive family!

shaik92

hii, Me interested in seeking hsct[stem cell transplant] from India.me with rrms 5years post disease activity.Any one who has ms in India would be pyscological help for me.Please responds. Regards shaik

LeoVoisey

Chronic cerebrospinal venous insufficiency [CCSVI], or the pathological restriction of venous vessel discharge from the CNS has been proposed by Zamboni, et al, as having a correlative relationship to Multiple Sclerosis. From a clinical perspective, it has been demonstrated that the narrowed jugular veins in an MS patient, once widened, do affect the presenting symptoms of MS and the overall health of the patient. It has also been noted that these same veins once treated, restenose after a time in the majority of cases. Why the veins restenose is speculative. One insight, developed through practical observation, suggests that there are gaps in the therapy protocol as it is currently practiced. In general, CCSVI therapy has focused on directly treating the venous system and the stenosed veins. Several other factors that would naturally affect vein recovery have received much less consideration. As to treatment for CCSVI, it should be noted that no meaningful aftercare protocol based on evidence has been considered by the main proponents of the ???liberation??? therapy (neck venoplasty). In fact, in all of the clinics or hospitals examined for this study, patients weren???t required to stay in the clinical setting any longer than a few hours post-procedure in most cases. Even though it has been observed to be therapeutically useful by some of the main early practitioners of the ???liberation??? therapy, follow-up, supportive care for recovering patients post-operatively has not seriously been considered to be part of the treatment protocol. To date, follow-up care has primarily centered on when vein re-imaging should be done post-venoplasty. The fact is, by that time, most patients have restenosed (or partially restenosed) and the follow-up Doppler testing is simply detecting restenosis and retrograde flow in veins that are very much deteriorated due to scarring left by the initial procedure. This article discusses a variable approach as to a combination of safe and effective interventional therapies that have been observed to result in enduring venous drainage of the CNS to offset the destructive effects of inflammation and neurodegeneration, and to regenerate disease damaged tissue.

Emma1968

I've was diagnosed with primary progressive ms last week. I've. Had no remissions at all I just get worse. I walk with crutches and suffer extreme exhaustion. I'm currently on a 5 day course of methylphenidate 500mg. I'm fed up of people saying think positively . I can think of nothing to be positive about. My old life has gone and I can't accept this new life. Infant it's not a life it's and existence . I feel a burden to my fianc?? and extremely guilty to my children. I have a 5 moth grandson who I can no longer pick up. I'm so so sad. No one understands. My whole family is distraught and I blame myself. I think they'll all be better off without me. Does anybody understand or am I being selfish?

BellaLuna

I am so sorry you feel that way. I too have MS and have been devastated emotionally by the burden but things will change as they always do, so you need to ride the roller coaster for as long as life lets you. No one is ever better off without someone they love!