Highlights:
On April 17, 2024, the global community dedicated to bleeding disorders will unite to commemorate World Hemophilia Day. This annual event, initiated by the World Federation of Hemophilia (WFH), serves as a platform to advocate for improved treatment, care, and prevention strategies for individuals living with hemophilia and other bleeding disorders. This year’s theme, “Equitable access for all: recognizing all bleeding disorders,” underscores the imperative of ensuring universal access to healthcare services, regardless of one’s specific condition, demographic characteristics, or geographic location (1✔ ✔Trusted Source- World Hemophilia Day unites a global community in advocating for equitable access to care for all individuals with bleeding disorders
- The 2024 theme, "Equitable access for all: recognizing all bleeding disorders," underscores the importance of inclusivity and recognition of diverse conditions
- By raising awareness and mobilizing resources, World Hemophilia Day aims to address disparities in treatment access and improve outcomes for affected individuals worldwide
World Hemophilia Day
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12 Hidden Facts About Hemophilia B
The second-most common form of hemophilia is hemophilia B. It is also known as Christmas disease or factor IX deficiency. Here are some interesting facts about hemophilia B
The second-most common form of hemophilia is hemophilia B. It is also known as Christmas disease or factor IX deficiency. Here are some interesting facts about hemophilia B
‘Did You Know?
Over 11 lakh men worldwide are affected by inherited bleeding disorders, yet only 15% have access to adequate treatment. #medindia’
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Over 11 lakh men worldwide are affected by inherited bleeding disorders, yet only 15% have access to adequate treatment. #medindia’
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History of World Hemophilia Day
World Hemophilia Day traces its origins back to April 17, 1989, when it was first observed by the WFH in honor of Frank Schnabel, the organization’s founder. The history of hemophilia itself is a testament to the enduring quest for understanding and treatment.Initially recognized in the 10th century as a mysterious ailment affecting predominantly males with excessive bleeding tendencies, hemophilia remained largely misunderstood and untreatable for centuries. It wasn’t until the pioneering work of individuals like Dr. John Conrad Otto in the 19th century that significant strides were made in elucidating the genetic inheritance patterns of the disorder.
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Hemophilia - Causes - Treatment - Genetic Testing - Support Groups
Hemophilia is a rare single gene, X- linked disorder, which tends to run in families.
Hemophilia is a rare single gene, X- linked disorder, which tends to run in families.
Theme of World Hemophilia Day 2024
The theme for World Hemophilia Day 2024, “Equitable access for all: recognizing all bleeding disorders,” reflects the ongoing commitment of the global community to ensure that every individual affected by a bleeding disorder receives comprehensive care and support. This theme builds upon previous years’ focuses, such as the promotion of preventive measures and the importance of partnership and policy in advancing treatment accessibility. By recognizing the diverse spectrum of bleeding disorders and advocating for inclusive healthcare practices, World Hemophilia Day aims to foster a more equitable and compassionate world for all those impacted by these conditions.Advertisement
Novel Potential Treatment for Hemophilia A
Once-weekly injections of efanesoctocog alfa can reduce bleeding and produce near-normal factor VIII activity in hemophilia patients.
Once-weekly injections of efanesoctocog alfa can reduce bleeding and produce near-normal factor VIII activity in hemophilia patients.
Significance of World Hemophilia Day
The significance of World Hemophilia Day cannot be overstated, particularly in light of the persistent disparities in access to care and treatment options. Despite significant advancements in medical science, many individuals living with hemophilia and other bleeding disorders continue to face barriers to adequate healthcare, particularly in low- and middle-income countries. By raising awareness, advocating for policy changes, and mobilizing resources.World Hemophilia Day serves as a catalyst for positive change on both a local and global scale. Moreover, by fostering a sense of community and solidarity among patients, caregivers, healthcare professionals, and advocates, this annual observance underscores the importance of collective action in addressing the multifaceted challenges associated with bleeding disorders.
As we commemorate World Hemophilia Day on April 17, 2024, let us reaffirm our commitment to the principles of equity, inclusivity, and compassion. By standing together as a global community, we can strive to ensure that every individual affected by a bleeding disorder receives the care, support, and dignity they deserve. Through advocacy, education, and empowerment, we can work towards a future where hemophilia and other bleeding disorders no longer pose insurmountable obstacles to health and well-being. Together, we can make a difference.
Reference:
- World Hemophilia Day - (https://wfh.org/world-hemophilia-day/)
Source-Medindia
New Capsule Found to Treat Hemophilia
Hemophilia is a bleeding disorder that occurs due to the absence of a clotting protein. Capsules show new hope for hemophilia treatment, reveals study.
Hemophilia is a bleeding disorder that occurs due to the absence of a clotting protein. Capsules show new hope for hemophilia treatment, reveals study.
