Highlights:
International Albinism Awareness Day based on a resolution adopted by the United Nations’ General Assembly, is observed annually on June 13th to celebrate the human rights of persons with albinism worldwide.
"Strength Beyond All Odds" the theme for this year's International Albinism Awareness Day highlights the achievements of people with albinism around the world to encourage that people with albinism can defy all odds and celebrate how people with albinism worldwide meet and exceed expectations in all domains of life.- International Albinism Awareness Day is celebrated on 13th June
- 2021 theme "Strength Beyond All Odds" highlights the achievements of people with albinism around the world
- The awareness campaign upholds the human rights of albinism people facing discrimination
New Drug Nitisinone Benefits People With Albinism
Drug nitisinone was found to increase melanin production in some people with oculocutaneous albinism type 1B (OCA-1B), a rare genetic disease.
Drug nitisinone was found to increase melanin production in some people with oculocutaneous albinism type 1B (OCA-1B), a rare genetic disease.
‘International Albinism Awareness Day 2021 theme “Strength Beyond All Odds” highlights the achievements of people with albinism around the world as a part of the albinism awareness campaign.’
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What is Albinism?
Albinism is a rare, non-contagious, genetically inherited condition resulting in lack of pigmentation (melanin) in the hair, skin, and eyes, causing vulnerability to the sun and bright light since birth. The condition may lead to visual impairment and skin cancer. There is no cure for albinism.The process of diagnosing albinism most often involves physical examination, discussion about skin and hair pigmentation changes, examination of the eyes by an expert (ophthalmologist) and comparing the individual’s coloration with that of the family members. But the most reliable way to diagnose albinism is with genetic testing.
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3D Bioprinter can Recreate Human Skin Pigmentation
3D bioprinter can control the distribution of melanin pigments on a biomimetic tissue substrate to look like human skin.
3D bioprinter can control the distribution of melanin pigments on a biomimetic tissue substrate to look like human skin.
Health Challenges of People with Abinism
The majority of people with albinism die from skin cancer between 30 and 40 years of age due to inaccessibility to their right to health including regular health checks, sunscreen, sunglasses and sun-protective clothing.Consequently, in the domain of development measures, persons with albinism are among those left furthest behind the need to be targeted for human rights interventions in the manner envisioned by the Sustainable Development Goals.
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How Does Stress Cause Gray Hair?
Scientists have discovered exactly how the process of graying of hair takes place.
Scientists have discovered exactly how the process of graying of hair takes place.
Albinism and Human Rights
People with albinism face multiple forms of discrimination worldwide as the physical appearance of persons with albinism is often object of erroneous beliefs and myths influenced by superstition, which foster their marginalization and social exclusion leading to various forms of stigma and discrimination.The UN Member States continue their efforts to protect and preserve the rights of persons with albinism to life, dignity and security, as well as their right not to be subject to torture and cruel, inhuman or degrading treatment or punishment to continue their efforts to ensure equal access for persons with albinism to employment, education, justice and the enjoyment of the highest attainable standard of health.
Albinism - Media & Hollywood
albinism is a genetic disorder resulting in the decreased production of the malaria pigment, causing hypopigmentation in the affected individuals.
albinism is a genetic disorder resulting in the decreased production of the malaria pigment, causing hypopigmentation in the affected individuals.
Albinism – Statistics
- The genetic condition is seen in 1 out of 17,000 people worldwide
- Albinism gene can survive up to 7 generations
- In the US, one in 8,000 to 20,000 people has some type of albinism
References:
- Information Bulletin – What is Albinism? - (https://www.albinism.org/information-bulletin-what-is-albinism/)
- People with Albinism Form First Ever Global Alliance - (https://www.hrw.org/news/2020/01/28/people-albinism-form-first-ever-global-alliance)
Source-Medindia
