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The National Institutes Of Health (NIH) has just begun a new program to help doctors working with rare diseases.
Churg-Strauss Syndrome: Causes, Symptoms, Diagnosis & Treatment
Churg-Strauss Syndrome is a rare disease characterized by inflammation of blood vessels that can restrict blood flow to vital organs.
Churg-Strauss Syndrome is a rare disease characterized by inflammation of blood vessels that can restrict blood flow to vital organs.
In addition, two DNA sequencing centers will be involved in providing genomic information gathered from patient samples.
The UDN Gateway provides a central place for patients to apply for the program. It’s an online platform. The program expects to sign up approximately fifty patients in each of the participating clinical facilities.
Prune Belly Syndrome Symptoms – Treatment – Complications – Prognosis
Prune belly syndrome is characterized by an absence of abdominal muscles, severe abnormality of the urinary tract and undescended testes
Prune belly syndrome is characterized by an absence of abdominal muscles, severe abnormality of the urinary tract and undescended testes
Source-Medindia
Coordinated Effort is Important in Fight Against Rare Diseases
Since there are very few cases of rare diseases reported in India, health ministries do not make an effort to know about them, says APJ Abdul Kalam, former President of India.
Since there are very few cases of rare diseases reported in India, health ministries do not make an effort to know about them, says APJ Abdul Kalam, former President of India.
Steve Waugh Foundation Helps Victims with Rare Diseases
Steve Waugh foundation founded by the former Australian captain Steve Waugh renders help to victims who battle with rare diseases.
Steve Waugh foundation founded by the former Australian captain Steve Waugh renders help to victims who battle with rare diseases.
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