Founder Member of ORDI
Prasanna Kumar Shirol, a founder member of ORDI, He has worked extensively to create awareness specifically on Lysosomal Storage Disorder in India. He has represented India at various international conferences and created a powerful network of international parent and rare disease groups.
Prasanna Kumar Shirol, a founder member of ORDI, in an exclusive interview with Medindia, talks about the issues facing patients with rare diseases in India.
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