Prasanna Kumar Shirol's Profile

Prasanna Kumar Shirol

Founder Member of ORDI
Prasanna Kumar Shirol, a founder member of ORDI, He has worked extensively to create awareness specifically on Lysosomal Storage Disorder in India. He has represented India at various international conferences and created a powerful network of international parent and rare disease groups.

Issues of Patients with Rare Diseases in India: Interview with Prasanna Kumar Shirol, Founder Member of ORDI

Rare diseases are defined as diseases that affect a small percentage of the population. Because of the rarity of each disease itself, much remains unknown about many rare diseases. Lack of awareness coupled with the health authorities' attitude towards rare diseases lead to many undiagnosed cases or the diagnoses come after the disease has done fatal damages.

The Organization for Rare Diseases India (ORDI) was founded in 2014. The non-profit organization, which serves an umbrella organization for rare disease patients and other stakeholders in the country, aims to improve the health of patients with rare diseases in India through awareness and advocacy. ...

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Other Interviews

Debayan Gosh Dr. Dolly Khanna Dr. C.U.Velmurugendran Dr. Kannan Pugazhendi HRH Princess Dina Mired Dr Dharini Krishnan Dr. P. Senthilkumar Dr. V. Mohan Dr Duru Shah Dr. David Wiebers, M.D. Dr. David Wiebers Kevin Dai  Padmashri Dr. K.M. Cherian, MBBS, MS, FRACS, DSc (Hon), DSc (HC) Mr. S.K. Dogra Dr. Alan R. Hirsch M.D., F.A.C.P Dr. Rekha Ramachandran Ravi Samuel Dr. Gopi Chellan Dr. Blossom Kochhar Dr. Georgi Abraham, MD, FRCP Dr. V.Shantha Dr. Suniti Solomon Dr. P.N. Someshwara Rao, M.S. MRCS, FPS Karen Anderson Zabe, Dr. Saleem Mohammed Dr. S. Suresh Bhushan Gaur Dr R K Mani  Dr. Krishna Raman MBBS, FCCP (Internal Medicine) Dr. Prakash Boominathan