12-week old- Sophie Maxwell from South Tyneside is a victim of hypoplastic left heart syndrome - a congenital heart condition where the heart's left ventricle is severely underdeveloped.
When she was just 5 days old, the baby had to undergo an open heart surgery. Doctors have predicted that she will need two more heart operations and might even need a transplant.
She is now 12 weeks old and is being labeled a brave heart and a fighter by the hospital doctors. She has been allowed to go home for the first time.
Her mother Kerry Anne, 27, said: 'Despite everything she's been through, she's a really happy little baby. If it wasn't for the tube she still has, you wouldn't know there was anything wrong. I think the oldest living person with Sophie's condition is 21, so that does give us a glimmer of hope that she could live for another 20 years or more, but we're treasuring every moment we've got with her.'
She added: 'The surgeon who operated on Sophie said he always thinks, "where there's life, there's hope" and he's right.'