Telemedicine, home-monitoring devices, regular medical appointments, positive reinforcement from carers and health professionals could keep supported self-management plans on track during the pandemic, says Flinders PhD researcher Nicole Saxby, lead author on a study of key tools for program maintenance. This is particularly vital for chronic conditions of childhood such as asthma, cystic fibrosis, congenital heart disease, diabetes, mental illness, as well as those with experience of childhood cancer or disability.
‘New consensus list developed for kids with chronic diseases provides easy-to-follow guidelines for safe and effective self-management practices.’
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Ms Saxby, is lead author on a new publication in Patient Education and Counseling (Elsevier) with colleagues from, Royal Hobart Hospital, Flinders University and the University of Tasmania.Read More..
"From what we are seeing in Australia and overseas, significantly fewer children are presenting to hospitals or making contact with health professionals due to concerns about COVID-19," Ms Saxby says.
"There is a great need to empower children and their families to actively manage their own health, particularly if they're not keeping up their appointments.
"During periods of isolation, it is very important to watch for any early signs of a child's health starting to deteriorate. Children and young people cannot self-manage their health themselves, They will need different levels of support from their caregivers and health professionals."
The research has resulted in a new clinical resource called 'Partners in Health: Self-Management Consensus List for Children and Young People' which aims to provides easy-to-follow guidelines for safe and effective self-management practices - including methodology, care components and considerations for specific developmental groups.
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Ways paediatric health services can use technology to communicate and educate children and their families include assessments via screen and digital connection to the home medical monitoring devices, frequent emails, and home visits by nurses and allied health professionals.
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"During the COVID-19 crisis, it's also important our children and adolescents with health conditions to socialise with others - and social media networks such as Facebook groups is just one way to keep in touch."
Flinders Professor Sharon Lawn adds that chronic condition self-management approaches designed for adults may not fit with the needs of children with chronic conditions and their families.
"Children are not just little adults," she says. "These findings offer health services and professionals fresh insights into the transitions these children and their families must navigate as part of supported self-management," Professor Lawn says.
Source-Eurekalert