About My Health Careers Internship MedBlogs Contact us
Medindia LOGIN REGISTER
Advertisement

Euthanize My 6 Children Suffering from a Rare Genetic Disorder: Father to Indian Prez

by Shirley Johanna on June 5, 2015 at 6:17 PM
Font : A-A+

Euthanize My 6 Children Suffering from a Rare Genetic Disorder: Father to Indian Prez

A 42-year-old father from Agra, India, has decided to write to President Pranab Mukherjee seeking euthanasia for his six of eight children, aged between 8 to 18 years, who are suffering from a rare neurological disease called Canavan.

Canavan is a disease wherein the growth of children is developmentally delayed and over time the patient suffers seizures and becomes paralyzed.

Advertisement

Mohd Nazir, said, "In 2-3 years my children will no longer be able to walk. I am tired of taking care of my children. I'm a normal sweet shop owner, there's only so much I can do for them. That is when I decided to write to the President of India, pleading euthanasia for my children."

"My kids want a normal life. They want to be a part of festivities too but because of their condition, they can't," said Tabassum, who has lost all hope.
Advertisement

Six children - five sons and a daughter suffer from canavan. Only their eldest son and youngest daughter are leading normal lives. 

Nazir's plea for euthanasia does not fall under the Supreme Court in 2011, which regulated passive euthanasia which allows withdrawal of life-prolonging medical treatment for the terminally ill patients.

"If not euthanasia, I would request the President to give me financial assistance for the treatment of my children," said Nazir.

Rajesh Srivastava, Additional District Magistrate of Agra, said, "CMO officials did visit the family. They are getting their Aadhar card and BPL card made and will soon give them the required help."

Source: Medindia
Advertisement

Advertisement
News A-Z
A B C D E F G H I J K L M N O P Q R S T U V W X Y Z
News Category
What's New on Medindia
Good Nutrition Linked to Better Mental Health in School Children
Convulsions / Seizures / Fits - Symptom Evaluation
World Heart Day 2021 -
View all

Medindia Newsletters Subscribe to our Free Newsletters!
Terms & Conditions and Privacy Policy.

More News on:
Height and Weight-Kids Genetics and Stem Cells Amyotrophic Lateral Sclerosis (ALS) Christianson Syndrome 

Recommended Reading
Euthanasia for Children may be Approved in Belgium
On Wednesday, Belgium moved a step closer to extending mercy-killing to terminally-ill children. ...
France Allows 'Terminal Sedation' Until Death, not Euthanasia
The French Parliament stopped short of legalizing euthanasia but voted a law allowing medics to ......
Chilean Teenager With Cystic Fibrosis Who Asked for Euthanasia on YouTube Passes Away
Valentina Maureira died on May 14 due to complications from the genetic disorder, which attacks the ...
Euthanasia for Minors Debated By Belgium
A debate was opened to decided on whether to amend a decade-old law on euthanasia to cover minors, ....
Amyotrophic Lateral Sclerosis (ALS)
Find out more about the degenerative disease- Amyotrophic lateral sclerosis....
Christianson Syndrome
Christianson syndrome is a condition that occurs due to mutations (abnormal changes) in the gene SLC...

Disclaimer - All information and content on this site are for information and educational purposes only. The information should not be used for either diagnosis or treatment or both for any health related problem or disease. Always seek the advice of a qualified physician for medical diagnosis and treatment. Full Disclaimer

© All Rights Reserved 1997 - 2021

This site uses cookies to deliver our services. By using our site, you acknowledge that you have read and understand our Cookie Policy, Privacy Policy, and our Terms of Use