Dr. Namitha Kumar's Profile
MA - English, PhD (Psychology)
Her deepest passion is working on human experience of disability. She holds a PhD in Psychology. She is also interested in experiences of chronic and genetic illnesses.
Written / Edited / Medically Reviewed
Diagnostic odysseys, lack of drugs, therapeutics and cures make life difficult for rare disease patients and their families. The first digital Open Platform for Rare Diseases (OPFORD) is to provide quality, verified information and support for rare diseases.
Purple Day is a global initiative to increase public awareness of a common neurological disorder – epilepsy. March 26 is marked as a day to support the cause of epilepsy, host and organize awareness events.
World Down Syndrome Day is marked on 21st March each year to celebrate children and adults with Down syndrome and focus on specific issues.
World Rare Disease Day is marked on the last day of February each year to raise awareness about rare diseases.
International Congenital Heart Defect Day is marked each year on 14th February to raise awareness of genetic heart defects in children and adults,