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Use of Hospice in and Out of Nursing Homes and Transition Assessed

by Himabindu Venkatakrishnan on December 10, 2014 at 1:49 PM

Characteristics of hospice patients in nursing homes with hospice patients living in the community have been studied, as hospice for nursing home patients grows dramatically. A new study from the Regenstrief Institute and the Indiana University Center for Aging Research compares these characteristics. The study also provides details on how hospice patients move in and out of these two settings.


Longer lengths of hospice care, rising costs and concerns over possible duplication of services have led to increased scrutiny by policymakers of hospice patients living in nursing homes. Nursing home patients have longer hospice stays compared to individuals living in the community.

The researchers, led by Regenstrief Institute investigator and IU Center for Aging Research scientist Kathleen Unroe, M.D., MHA found that nursing home hospice patients were older, more likely to be women, more likely to be on both Medicare and Medicaid, and more likely to have dementia than individuals receiving hospice services outside a nursing home.

Nationally, an estimated 40 percent of Medicare recipients die with hospice. In the study, one in three Medicare recipients died with hospice. Cancer was the leading primary diagnosis for all hospice patients, although nursing home hospice patients were as likely to have a dementia diagnosis as a cancer diagnosis both nationally and in the study.

"Hospice is a poor fit for many people in nursing homes due to the way eligibility criteria currently are configured," Dr. Unroe said. "Yet nearly a third of hospice patients in the United States live in nursing homes, and the number is growing. Our goal is to understand more about who uses hospice and where they live so that policymakers can make informed decisions as they contemplate redesign of the hospice benefit."

Using 11 years of data, the researchers initially planned to contrast only the two groups: those who received hospice care in nursing homes and those who received hospice care in the community. But according to Dr. Unroe, it became apparent that that there were four groups that needed to be studied:

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