WASHINGTON, June 29, 2017 /PRNewswire-USNewswire/ -- On Thursday, June 22, 2017, Senate Republicanleaders released the draft text of the Better Care Reconciliation Act (BCRA), legislation to repeal the Affordable Care Act (ACA). The National Hemophilia Foundation, Hemophilia Federation of America, Coalition for Hemophilia B, and Hemophilia Alliance
People with hemophilia and other bleeding disorders live with a painful, chronic condition that requires expensive medication and specialized care provided by hemophilia treatment centers (HTCs) and other specialists. Without access to comprehensive insurance, our community members will suffer. We oppose the Senate bill because:
"The Senate must maintain the ban on lifetime and annual limits, which is a life-saving policy for people with bleeding disorders. Allowing states to define the essential health benefits will allow these caps to return, which harms not only our patient community, but other people with acute and chronic medical conditions," said Val Bias, CEO of the National Hemophilia Foundation.
"BCRA's drastic cuts to Medicaid would devastate the most vulnerable members of our community. Its estimated that some 30% of the bleeding disorders community rely on health coverage through Medicaid. BCRA's proposals to phase out the Medicaid expansion, cap federal Medicaid spending, and index future increases to an unreasonably low metric of inflation would be ruinous for people with bleeding disorders and other chronic conditions," added Kimberly Haugstad, President & CEO, Hemophilia Federation of America.
"As the organization that represents hemophilia treatment centers (HTCs), we know how vital comprehensive insurance coverage is to the bleeding disorders community. We don't want any of our patients to lose coverage. We will continue our work with Congress on policies that protect our vulnerable patient population," said Joe Pugliese, President of the Hemophilia Alliance.
This bill will be harmful to not only the bleeding disorders community, but many other vulnerable people living with expensive chronic conditions. Robust and fully-funded state Medicaid programs, Essential Health Benefits that include comprehensive drug coverage, protection from sky-high out of pocket costs, and access to affordable coverage are all vital to our community – and all are threatened by the Senate bill. The bleeding disorders community urges Senators to vote no on the Better Care Reconciliation Act.
About the Organizations:
Hemophilia Federation of America: Hemophilia Federation of America (HFA) is a national 501(c)(3) organization that assists and advocates for the bleeding disorders community. Incorporated in 1994, HFA provides programs and services to improve the quality of life for persons with hemophilia, von Willebrand disease (VWD) and other rare bleeding disorders. Media Contact: Sonji Wilkes, 303-887-2600; firstname.lastname@example.org
National Hemophilia Foundation: The National Hemophilia Foundation (NHF) is dedicated to finding better treatments and cures for inheritable bleeding disorders and to preventing the complications of these disorders through education, advocacy and research. Media Contact: Beth Marshall, 646-530-3598; email@example.com
The Coalition for Hemophilia B: The Coalition for Hemophilia B strives to make quality of life the focal point of treatment for individuals with Hemophilia B in the 21st century. Media Contact: Kim Phelan, 212-520-8272; Contact@hemob.org
The Hemophilia Alliance: The Hemophilia Alliance is a non-profit organization comprised of hemophilia treatment centers (HTCs) across the United States that provide patients with hemophilia and other bleeding disorders with comprehensive specialized diagnostic and treatment services and clotting factor delivery programs by participating in the 340B Drug Pricing Program. Media Contact: Joe Pugliese, 215-439-7173; firstname.lastname@example.org
To view the original version on PR Newswire, visit:http://www.prnewswire.com/news-releases/people-with-hemophilia-and-other-bleeding-disorders-urge-their-senators-to-reject-dangerous-health-reform-legislation-300482342.html
SOURCE Hemophilia Federation of America (HFA)
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