Epilepsy Support Groups
IndiaPune Support groups
Samvedana epilepsy support group
539 Nutan society, opposite Mawle hospital,
Narayan Peth, Pune
Timings: Every Tuesday, 5 to 7 pm
Monthly support group meetings are held at Karnataka High school, Prabhat road, Pune
Contact person: Ms Radhika Despande
Phone no: 9850887644
De-addiction support group
Muktangan Drug Awareness & Counselling centre
543 Narayan Peth, Gondhale Galli,
Opposite Mavale hospital,
Pune 411030
Timings: 5 pm to 8 pm (Sunday closed)
Website: www.muktangan.org
Mumbai Support Groups
ChildRaise
Committed to the Welfare of a Special Child
Contact : Kavita Shanbhag
Ph:+91-22-24377457
Time: Mon-Sat 1pm to 5pm, Sunday 10-12
Website: www.childraise.com
"Samman"
Epilepsy Support Group of Indian Epilepsy Association - Bombay Chapter
E-CELL
J.S.S. Municipal School, 2nd floor, Nana Chowk
Next to Shetty's Restaurant, Grant Road(w)
Mumbai - 400007
Tel: 3858563
Mon - Sat - 2 to 6 pm. Sun 10am to 12 noon.
web site: www.ieasamman.org
E-Cell Epilepsy Information Centre
J.S. Municipal School, Nana Chowk,
Grant Road (W) Mumbai - 400007
Contact : Manisha and Alpana
Phone No. 385-0563
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My son Michael Mirai was born with a rare type of epilepsy called Dravet syndrome, also known as Severe Myoclonic Epilepsy of Infancy [SMEI]. This is a rare and catastrophic form of intractable epilepsy that begins in infancy. Individuals with SMEI suffer from intellectual disabilities as well as severe behavioral and development delays. All effort made to be sure he did not live his life miserably with deadly disease proof abortive. I have carried him to different Doctors, use different prescription drug all to no avail.
Dr. Lawson!!! (with tears of joy) I will forever be indebted to you. Your medicine worked perfectly well and now my son is cured of Epilepsy completely. Continue your good job......
Planning to marry a girl, I have not even engaged with her as of now but i got to know she have fits. Her age is 23, she got fits at age of 14 and 18 for few min only and using medicines continuously. In last six years no problem with fits and still continously using medicine. SO please guide me, we can overcome this problem? after marriage If I will marry then in future, kids also affectng the same? Please suggest. Thanx, shabs
my 3.5 yrs son suffering fits for last one month. he gets unconcious for 5 -10 minutes, so we consult neurologist and done many tests like EEG, CT and MRI and all are normal hE is still and Dr. suggested us to use valprine 200mg syrup 5 ml daily we are using since last 10 days and again yesterday he got the same problem.how long will the treatment go and will he will be able to lead a healthy life in future.please suggest me.
My father in law, he is 78 years he is epilepsy patient but from past 40 years he is normal, that to without tablets but in jan 31 he started vomiting we admitied him in hospital; they did MRI brain. There r 3 small clots but not treatable after 10 days he felt in a bathroom he told it was because of fit, again we consult dr. EEG done. They started medicine for fits 16 tab per day he is becoming dull day by day he was not able to walk or stand we were worried, as he is a dr he was not satisfied with his dr we change the dr. she stopped all tab and started levetiracetam ,then he was fine only incoherent talk was there doctor said that he is fiting inside the brain after two month he became violent he use to beat, shout , again we admit him he went in coma. after 20 days dr. told take him home and give him care and hop for best but after 1 and 1/2 month he came out from coma and start talking, eating no one believe not even dr. that he recover very well but again after 1 and 1/2 month he started becoming dull and on 7/9/2013 he had fit he bite his toung then again he was hospitalized he is in MICU in coma for12 days in room for8 days now after one month recovering ....what shill I do more for him, please help
My daughter aged 13 years just suffered from fits for the first time. She attained age and the illness occurred on the 7th day morning of her second month's menstruation. She was partially unconscious for about 20 minutes followed with heavy vomiting several times. Doctor advised for several tests including ct scan. is it occurred due to some hormone changes in body, loss of blood ect? is it curable?
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