Support Groups - Ataxia

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Last Updated on Jul 29, 2014
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Support Groups - Ataxia

SAMAG - Seek a Miracle Ataxia Group
http://www.samataxiagroup.org

National Ataxia Foundation
http://www.ataxia.org/connect/default.aspx

Friedreich Ataxia Support Group
http://www.mdjunction.com/friedreich-ataxia

Living with Ataxia
http://www.livingwithataxia.org/

References:

  1. Harrison’s Principles of Internal Medicine 17th edition
  2. Brunberg JA. Ataxia. American Journal of Neuroradiology 2008; 29:1420-1422

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CAN CEREBELLAR ATAXIA BE AGGRAVATED BY ANY KIND OF ACTIVITY? ALSO, IS THIS DISORDER PART OF THE PARKINSON DISEASE FAMILY?>=

Willowkitty

I cannot walk a straight line. It was so bad Sunday that I went to the hospital to see if I had a stroke. No stroke, no MS, taking meds for heart attack back in December. Doctors don't know what is causing it. Very frustrated.

Last month, I got injured in my head due to road accident. I found some symptoms in me relevant to ataxia. What should i do next ?

I got ataxia from interferon shots. Collapsed one day, wound up in hospital for 2 weeks in a coma, had pneumonia, anemia requiring transfusion, dysphagia, dyskinesia and dysarthria, After 3 months of therapy speech is still affected and still cannot walk w/o qualified supervision. Are there any treatments available?

For the last two months, I have had Bacteremia four times with E-Coli ESBL, and Proteus. I have been covered extensively with Gentamicin and Vancomycin. My Creatinine has been rising and is now 131. My GFR has been decreasing, which is now 38. As well, I have lost my sense of balance and I am experiencing a great deal of difficulty walking. Initially I thought this was due to severe anemia, HGB 88, with iron depletion. Now I wonder about ataxia from the aminoglycocides, and if this is the case, is it reversible?

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