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Narcolepsy - Symptoms & Signs

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Symptoms & Signs of Narcolepsy

Main symptom of Narcolepsy includes – ‘Excessive daytime sleepiness’ (EDS)


Individuals suffering from narcolepsy may portray initial symptoms between the age of 10 and 25, though in certain cases it could show up even before the age of 10. Victims experience symptoms in varying degrees, although for most it remains a chronic condition.

The inability to control the sleep cycle results in the following symptoms in the affected person:

  • Directly falling into REM sleep without first experiencing NREM sleep
  • Falling asleep at abnormal times,without warning and during the day

Experiencing some aspects of sleep that normally occur only during REM sleep, such as sudden lack of muscle tone, sleep paralysis. Vivid dreams occur at odd times during sleep in people with narcolepsy.

The important signs and symptoms of narcolepsy include:

  • Excessive daytime sleepiness (EDS)
Narcolopsy Cycling

Cycle of sleepiness

The most common major symptom of narcolepsy is ‘Excessive Daytime Sleepiness’ (EDS). The person experiences an overwhelming drowsiness and an uncontrollable need to sleep during the day. Sleep attacks often occur at inappropriate times such as while driving or during a meeting. Victims could experience bouts of sleep lasting anywhere from 15 minutes to one hour after which they wakes up feeling fresh and energized. This feeling may last an hour or two after which the person may feel the urge to go back to sleep again. This cycle of frequent sleep and wake up stages is typical of narcolepsy victims.


Some victims may not actually sleep, yet are constantly fighting day time sleepiness. Individuals with narcolepsy are plagued by untimely urges to fall asleep and grow tired with their ceaseless efforts to stay awake, which greatly affects their quality of life. sleep, for them, can occur anywhere, while driving,for instance or during a meeting.

  • Cataplexy

Cataplexy is a sudden loss of muscle tone that leads to a feeling of weakness and a loss of voluntary muscle control. The loss of muscle tone can vary from being mild , such as gentle drooping of the eyelids, to a complete loss of tone in all voluntary muscles, leading to total physical collapse in which the patients are unable to move, speak, or keep their eyes open.

Cataplexy patients are conscious even during the most severe experiences and this is an important difference between cataplexy and seizure disorders. Yet, cataplexy descends without notice; most often the triggers are sudden emotions , such as fear, anger, stress, excitement or even laughter, which is the most common of triggers. Cataplexy occurs in 70 percent of all narcoleptic patients.

  • Sleep Paralysis

Sleep paralysis is the inability to move immediately before falling asleep or upon awakening. These episodes are usually brief and last only for a few seconds to several minutes, but they can be frightening. The patient is usually aware of the condition and has no difficulty recalling it.

Sleep paralysis mimics the type of temporary paralysis that normally occurs during rapid eye movement (REM) sleep, Not everyone with sleep paralysis has narcolepsy. Even normal people may experience a few attacks of sleep paralysis, especially when young.

  • Hallucinations

An estimated 5 percent of narcolepsy patients suffer from hallucinations. They are brief and last only for a few minutes. These hallucinations are called:

  • Hypnogogic hallucinations: which occur while falling asleep.
  • Hypnopompic hallucinations: which occur while waking up.

The hallucinations can be related to vision, sound or sensory (visual, auditory, or tactile) and often frighten or disconcert the patient with terrifying shapes and noises. Patients experiencing hypnogogic and hypnopompic hallucinations can be woken up without too much trouble.

  • Other characteristics

Some patients are restless at night while some portray occasional automatic behavior during the night.

During episodes of automatic behavior, the person continues to function during sleep episodes - e.g. talking and putting things away; but he wakes up with no memory of performing such activities. In some cases, victims gesticulate widely, or indulge in kicking or screaming while dreaming.

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  1. Narcolepsy Fact Sheet - (http://www.ninds.nih.gov/disorders/narcolepsy/detail_narcolepsy.htm)
  2. Narcolepsy - (http://www.mayoclinic.com/health/narcolepsy/DS00345)
  3. About Narcolepsy - (http://en.wikipedia.org/wiki/Narcolepsy)

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I heard this condition might be linked to the H1N1 vaccine, we believe my 12 year old daughter has it and it was right after she had the vaccine.

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