Written by Dr. Anitha Paderla, MBBS | 
Medically Reviewed by Dr. Sunil Shroff / dr. reeja tharu, MBBS, MS, FRCS (UK), D. Urol (Lond) on Nov 18, 2016

Narcolepsy support groups

Victims of narcolepsy are greatly benefited by Patient support groups which help them deal with embarrassment about symptoms that often compelled them to socially isolate themselves.

Many patients are wary of strong emotions and excitement, fearing cataplectic attacks. Misconceptions about the disease due to lack of awareness also causes misjudgment of cataplectic patients. They are thought to be lethargic, without motivation and zest for life.

Such experiences make victims feel awkward and embarrassed. Support groups can go a long way in assisting victims cope with the disorder.

Narcolepsy Internet's Jumpstation Provides an annotated list of support groups, research, news, and abstracts.

References:

  1. Narcolepsy Fact Sheet - (http://www.ninds.nih.gov/disorders/narcolepsy/detail_narcolepsy.htm)
  2. Narcolepsy - (http://www.mayoclinic.com/health/narcolepsy/DS00345)
  3. About Narcolepsy - (http://en.wikipedia.org/wiki/Narcolepsy)

Comments

1a2b3c Wednesday, March 9, 2011

I heard this condition might be linked to the H1N1 vaccine, we believe my 12 year old daughter has it and it was right after she had the vaccine.

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