Last Updated on Jul 05, 2016

Ethical/ legal/ social issues

Permission to do genetic testing in the form of informed consent must be obtained.

The patient should be made to understand the implications of genetic tests and should be provided information regarding the benefits, the effectiveness, the risks and the alternatives.

Information from genetic testing has the potential to change the lives of individuals and their families. In addition, in some countries, these tests may have a say in employment and insurance companies. Therefore the right of individual to maintain privacy with regard to the genetic test results must be respected.

Access to genetic information should be limited due to its sensitive nature and a high level of confidentiality should be maintained.

The possibility of searching for specific genes will eventually lead to people asking for designer babies, including those with higher intelligence and selected sexual orientation. The ethicality of such a move is no doubt debatable.

Genetic testing is also making it possible to study a person’s potential to indulge in substance abuse or have anti- social personality disorder. The repercussions of these tests are again a topic of discussion.

Certain potential future ethical problems related to genetic testing were considered in the science fiction film ‘Gattaca’ and also in the science fiction series ‘Gundam Seed’.

Comments

Saravana_Solaisamy Tuesday, June 2, 2015

One of my relative's son has low biotinidise enzyme. He was born 2 weeks ago in USA and is using biotin 5MG tablets now. They are in USA and want to come to Chennai - in 3 months from now [2-June-2015]. They were told that a blood sample needs to be tested for biotin every 6 months to adjust the dosage of Biotin prescribed for the baby. Is Biotin tablets for infants available in Chennai? Is there medical centers/labs/doctors at Chennai who treats such biotin related gene disorder? Any early response is greatly appreciated. Thanks !

mjav123 Monday, September 8, 2014

Dear Doctor, My daughter is suffering from CAH and she need a genital corrective surgery. She is under AIIMS treatment. I do not know if where CAH is being treated. Due to a long waiting time I wish to have an alternate opinion. Please suggest me. Thanks a lot.

Noorian Wednesday, June 25, 2014

Hello Doctor, can you please suggest the best place in India for genetic counseling. My daughter who is now 5 1/5 years old had long segment hirschsprungs diseases at birth which was treated with pull through surgery. Both me and my husband are not aware of any family history of hirschsprungs in our family. Now I am planning for another kid but before that want to be sure of the underlying reason for my daughter's condition and the chances of recurrence in future pregnancies. Any advice on this will be very much appreciated. Thank you!

suparnadas Sunday, July 27, 2014

The best genetic counselor in India by popular consensus is Dr.Ashok Prasad who is a professor also holding a genetic counseling masters from Brandeis University. He works only on a charitable basis in Gorakhpur but am sure could be persuaded to advise you

tulika12345 Wednesday, June 25, 2014

Hello doctor, we had a child who was effected by spinal muscullar attrophy[type one]. Now we are planning for our next baby. doctor told us to go for CVS testing. but I want to know whether there is any other ideal option for us.Pleas give me suggestions. Subhajit bhowmick

roopagupta Wednesday, May 21, 2014

helllo doctor,my wife is a pregnant our doctor is prefre to amniocentesis so plz tell me where i do in delhi,india and how much it cost

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