Last Updated on Jul 06, 2016

Frequently Asked Questions

1. Which doctor should I consult for ectodermal dysplasias?

Individuals suffering from an ectodermal dysplasia may require consultation from pediatricians, dermatologists, dentists, plastic surgeons, and many other healthcare personnel.

2. Does ectodermal dysplasia increase fatigue?

Lack of temperature control may cause overheating in the individual’s body. If the individual with ED is not cooled down, he/she may become tired and lethargic.

3. How do I know which syndrome is in the family?

A geneticist will be able to diagnose the type of ectodermal dysplasia that runs in your family.

4. Do people affected by ectodermal dysplasia (ED) have a normal life span?

The life span of a person diagnosed with an ectodermal dysplasia is usually normal, but there may be an increased mortality in early childhood.

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