Seeking help from a professional counselor might also be a good idea.
It is considered very useful to learn about the disease and to be aware of the methods that might help in living with it.
Here are a few tips that would help a person to cope with CF -
- Monitoring by an expert team at least once in 3 months is mandatory
- Take a balanced diet that includes fruits, veggies and grains
- Exercise regularly. Do chest therapy as directed
- Drink plenty of fluids
- Avoid smoking/excessive alcohol
- Wash hands to control infections
- Take medications and high-salt diet as prescribed by the doctor
- Normal sex is possible but infertility may be a problem. Consult a doctor if pregnancy is planned. Several ART techniques are available that may help a person with CF.
- Consult a doctor if you have the following signs:
- Persisting Fever
- Blood in the mucus
- Increased quantity of mucus
- Change in the color / consistency of mucus.
- Decreased appetite
- Feeling extreme tiredness
- Dark green vomit
- Severe constipation / diarrhea
- Severe abdominal pain
Please remember that people with CF can lead normal lives if they lead a lifestyle best suited for them and follow the advice of their health-care providers.
Joining a patient support group may help to provide emotional support to a person living with cystic fibrosis, ease their anxieties and offer relief to their well-founded fears.
Never forget to lend support to a loved one with CF. They really need it!
United State of America (USA)
1. Cystic Fibrosis Foundation
http://www.ccf.org/
2. Cystic Fibrosis Research, Inc (CFRI)
http://www.cfri.org/educate.shtml
3. Boomer Esiason Foundation
https://www.esiason.org/
United Kingdom (UK)
1. Cystic fibrosis trust
www.cysticfibrosis.org.uk
2. Chloe Cotton Trust Fund
https://en.wikipedia.org/w/index.php?title=Chloe_Cotton_Trust_Fund&action=edit&redlink=1
India
1. Reaching Out Foundation
http://www.reachingoutfoundation.org/