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Amyotrophic Lateral Sclerosis (ALS) - Frequently Asked Questions

Last Updated on May 07, 2018
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Frequently Asked Questions

1. Which doctor treats ALS?

Initially the general physician who first sees the patient may suspect ALS and refer the patient to a neurologist who then diagnoses the disease and treats the patient. Overall management and supportive care will be provided by a team of health care providers.

2. At the initial stage of the disease, what should the patients find out from their doctors?

Doctors should explain to the patient about the disease, the course it would take and also make the patient understand the various treatment options available to the patient so that he can make informed decisions.
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3. How should the patient cope with ALS?

Being diagnosed with ALS can be devastating to the patient and family members. Obviously there will be a grieving period where everyone concerned will try to come to terms with the situation. It is always essential to maintain a positive attitude as this will prolong survival and improve the quality of life. Many with ALS remain intellectually active and this is another rewarding facet.

Making medical, financial or personal decisions well in advance will ease tension to a large extent.

Joining a support group for ALS can be comforting as the patient and family members will get to interact with people in similar situations.

With the right approach towards the disease and with good management and support, individuals with ALS can live better quality lives.

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Comments

mnarciastewart

With my amyotrophic lateral sclerosis [ALS], the first thing that happened almost 2 years ago now, was speaking as if I were drunk. I wasn't. I initially did improve speech (articulating clearly but slow) but now I can no longer speak in an acceptable way. Then, a year later eating became problematic, I was biting my tongue and lips, and chewing became weak and less controlled. Soon after that some fingers started to fail me and things would drop out of my hands. Somewhere at that time bulbar ALS was diagnosed. The Rilutek (riluzole) did very little to help me. The medical team did even less. My decline was rapid and devastating.. We tried every shot available but nothing was working. There has been little if any progress in finding a reliable treatment, Our care provider introduced us to Kycuyu Health Clinic ALS/MND herbal treatment. The treatment is a miracle.i recovered significantly! Visit www. kycuyuhealthclinic. com

glen66t

My ALS [Amyotrophic lateral sclerosis] Symptoms started out with a "foot drop" on my left foot. From there my left leg lost all muscle tone and the entire left leg muscles are gone. Also my fingers and thumbs "contract" at times. Left arm loses muscle tone too. My family doctor said there is no cure for ALS, I was just living unhappy life till I saw a blog talking about Best Health Herbal Centre. So many people said positive things about their herbal product which I don’t believe at first. I showed my daughter what I saw online about their product and my daughter decided we shall give it a try. Few days later she purchased two bottle of ALS herbal remedy which they said I will use for only six weeks. My life changed automatically after six weeks of applying the herbal remedy as instructed. All my symptoms was terminated completely and am now living ALS FREE .. All Thanks to Best Health Herbal Centre for their good work in people’s life. For more details about their herbal product visit their Homepage w ww .besthealthherbalcentre. co m

Andrea59

Are there any new treatments for Als?

hopeforjoy

My dearest friend, Joy Styles, died from ALS on July 1st 2011. She was only 52. She was running half marathons and was very active when she noticed an atrophy in her left and and a weakness in her right leg. I have created a website in her name http://www.hopeforjoy.ca that is about her and has useful information about the disease. I wish I could do more, but every little bit helps. God bless everyone who has had experience with this terrible disease.

Doctor_Lilly

My symptoms started off with extreme muscle spasms and cramps. It would get worse when I was on my monthly. I was walking and running at the time to lose some weight that I thought was causing the muscle aches, headaches, and the pain that I was feeling in my whole body. One day it got overwhelming. It was August 17th, 2007. I felt like I was getting the life squeezed out of me and my mind was racing the whole time while experiencing difficulty speaking, walking, and trying to control the jerky movements. I was admitted as a psychiatric patient at that time, now it's been two years later and I feel like I am disseminating. I had another attack recently and that is what scared me enough to go to the neurologist. I am still afraid. I want to see it, and I'm interested in the damage that my body has endured. Can't wait to start treatment. Findyourdrug.com

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