Acromegaly - Frequently Asked Questions

1. Which Doctor should I ideally see if I am suffering from Acromegaly?

You should see an endocrinologist.

2. What is gigantism?

Gigantism is the excessive secretion of growth hormone during childhood causing overgrowth of long bones and very tall stature.

3. Is Acromegaly a fatal disease?

Acromegaly itself is usually not fatal but the complications of Acromegaly can be life threatening. Successful treatment of Acromegaly will usually restore normal health.

4. How can Acromegaly be prevented?

There is no known way to prevent Acromegaly. Early detection is the best way to prevent severe symptoms and complications.

Published on Feb 10, 2009
Last Updated on Sep 05, 2014

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JonDanzig

Readers may also be interested to read my summary about the latest guidelines for acromegaly. http://doiop.com/AcromegalyGuidelines

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Kayla-S-M

I was diagnosed with a pituitary tumor in 2005. It was a late stage macroadenoma. I have had surgery, gamma knife radiation and I have had 2 years of sandostatin. I still never feel good. I have lots of fatigue, muscle weakness and I take a lot of medicine. Can anyone give me any good news on this. My email address is triplejent@hotmail.com. I would love to hear from some other acromegaly patients to hear their stories. Mine has been a nightmare. I was sick and not feeling well for quite sometime, fatigue like no other actually exhaustion to where I was nauseated and sometimes vomiting when I got home from work. Finally told my husband that I either had something wrong with my heart or I had cancer. I was having a lot of palpitations and chest pain so I was sent to a cardiologist my first go around and they didn't pick up on it was going to ablate the areas on my heart that were beating irraticaly. I just need to hear someone elses story. Please email me. Thank you. Kayla

smurff

hi Kayla, i too had a macroadenoma which was removed in 06 but did not need drugs however i too have profound fatigue and do not feel good at all. I now have bad joints everywhere and have had 3 total knee replacements and have also got Parkinson's disease. My quality of life is doing down the slippery slope. I am under so many specialists but none seem really interested. It is a lonely battle to get well and sometimes i wonder if i ever will but will not give up! good luck. Where do you live? snurff

mar4ela

You can read longer article here http://www.genericlook.com/diseases/Acromegaly/. Hope it will help you...