Infantile Cortical Hyperostosis - Diagnosis

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Dr. Reeja Tharu
Medically Reviewed by The Medindia Medical Review Team  on Apr 19, 2013
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Diagnosis of Infantile Cortical Hyperostosis

The clinical features suggest a diagnosis of Infantile Cortical Hyperostosis, which is confirmed by X-rays. X rays usually show gross thickening of the cortical end of the involved bone or bones, which may not be apparent during the early phase because it begins to appear after the swellings, have manifested themselves. However, bony changes start occurring within a short time and are characteristic of the disease. Elevated ESR Anemia, Increased levels of the enzyme alkaline phosphatase are some of the laboratory findings associated with this condition.

The condition has been occasionally diagnosed in the womb before the birth of a newborn.

Most of the bones of the body can be involved however it seldom involves finger bones (phalanges), spine (vertebral bodies) and bones of the hand (cuboidal bones).

The condition should be differentiated from 'battered baby syndrome' (due to child abuse) as bony trauma is the most frequent x-ray finding in child abuse. In child abuse the limb bones are commonly affected. Most of these children are below the age of one year.

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my baby sarah fought brilliantly against all odds but she could not tolerate the hospitalized infection(septicemia)and died on 8th nov 09.she was admitted for caffeys symptoms but got infected,drs says this that,but i would say one thing before admission drs should know the patient or else why they have admitted my kid,simply to study the case or they dont want to loose study material.end of the day i have lost my darling.
Sayed Aslam
Hubli
india

Its been 4 months ever since my daughter confirmed with Caffeys,she is on naproxen but no signs of improvement her body weight remains the same ever since her birth,her platelet count is more than 9.50 due to which drs are not giving even steroids which may further worsen her condition.she is been through severe pain and fever due to which she hardly sleeps.

MY BABY GIRL IS CONFIRMED WITH CAFFEYS DISEASE,SHOCKING IS NO FAMILY HISTORY DRS SAYS ITS A GENETIC DISEASE AND BABY IS 3 MONTH OLD IS THERE ANY TREATMENT..........

SAYED ASLAM
HUBLI.
INDIA

MY BABY BOY IS HAVING CAFFEY DISEASE, NO FAMILY HISTORY OF CAFFERY, HIS BLOOD TEST SHOWS HIGH HEMOGLOBIN, HIGH PLATELES AND GOANT TROMBOCIATES CELL, HE IS NOW 15 MONTHS, RIGHT RIB , MANDIBLE AND MAXILLE SWELLING, THE SWELLINGIS ALMOST NEARLY ONE YEAR. WHAT TREATMENT DID U GIVE YOUR CHILD

Annie0909

My mother had Caffey disease, I did when I was a child, and now my baby boy also has it. I am very interested to share experiences with other patients...

please let me know the treatment and the time period you all have taken to recover,as my 4 month old baby girl is also suffering from caffeys and her symptoms are very severe.please help me.....

guest

Similar experience-your son is over a year now,how is he getting on?

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