Systemic Lupus Erythematosus - Frequently Asked Questions

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Dr. Simi Paknikar
Medically Reviewed by The Medindia Medical Review Team on Jan 25, 2018
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Frequently Asked Questions

1. Which doctor treats SLE?

SLE is usually treated by a rheumatologist, who may also refer the patient to other specialists depending on the organs affected.

2. What is the prognosis of patients with SLE?

Some patients with SLE have a benign course while others may suffer from a rapidly progressive disease. The condition may be fatal in some, though the number of deaths caused due to the disease has reduced in the recent years, probably due to earlier diagnosis and effective treatments.

3. Can SLE affect pregnancy?

SLE during pregnancy has been associated with complications like spontaneous abortion, premature labor, preeclampsia, eclampsia (seizures due to high blood pressure), and fetal growth restriction and death. In addition, a higher incidence of postpartum bleeding, venous clots in the mother, and neonatal lupus in the baby have also been noted. Drugs like corticosteroids (prednisolone, prednisone or / and methylprednisolone), azathioprine, hydroxychloroquine and low-dose aspirin are permitted during pregnancy while mycophenolate mofetil, cyclophosphamide, and methotrexate cannot be used to treat SLE during pregnancy.

4. Can SLE be prevented?

Since SLE is an autoimmune disease with a genetic predisposition, it is usually not possible to prevent it. The manifestations can however be controlled with healthy lifestyle practices including avoiding smoking, avoiding exposure to sunlight and treating infections early. An early diagnosis and institution of treatment can help to reduce complications.

5. What is drug-induced lupus?

Drug-induced lupus refers to symptoms of lupus that appear due to the intake of medications like hydralazine, procainamide, quinidine, isoniazid, diltiazem, and minocycline. The symptoms usually resolve days to months after the drug is stopped.

6. What is neonatal lupus?

Neonatal lupus is a rare form of autoimmune disease where the baby is born with skin lesions similar to those of SLE and/or heart disease, sometimes with additional features. It usually arises due to the passage of autoantibodies like anti-Ro/SSA antibody and the anti-La/SSb antibody through the placenta from the mother to the child during pregnancy.

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My Sister is suffering from SLE. She is 12 years old and her kidney organ is also affected. How long should we take the treatment [doctor have informed that we have to give high dosage medicines initially]. How many years does it take to settle and is there a treatment available now? Is there a NGO to support financially for this disease?

John_123

My sister is recently detected with LUPUS SLE , her age is around 31 years .Doctor told us that it will be a long treatment . But all of us are wondering how long it will be . Please tell me is there any chance of complete cure or if it is controlled then can the person live a normal life ??? Also is there any NGO in India for any help.

Wendie

hey Mark,my name is Wendy and I was diagnosed with SLE when I was 16 years old. But before that,I went through a lot of suffering...pain,not knowing what was wrong nd I understand ur situation nd how U feel.There isn't much U can do about the pain other than learn how to manage it but most important,have a positive attitude,accept that U have it nd talk to those close to U to let them know how U feel as a support system is essential.But remember U are not alone nd have faith.

mark76

my name is mark I am 14 years old I have been diagnoses with SLE I am always in pain but its like no one even cares its life and i have to deal with it just wanted to put that out there i am always stress how can i prevent that? anyone?

http://www.arunachala-ramana.org/doctor_manickam.htm try the medicine by this doctor. Karthik chennai

jyotshana.kumari

My name is Jyotshna. I am 23 years unmarried girl, suffering from S.L.E, Which was detected by S.G.P.G.I, Lucknow. I am taking Wysalone-5mg daily with H.C.Q.S. My growth is not proper.I feel pains and weakness in joints. Is there any permanent treatment for this disease? If possible, please advice me.

Hi Jyotsna, You may be needing immunosupprasent as well.Which kind of SLE you have?Consult a nephrologist soon

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