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Parry-Romberg Syndrome

Parry-Romberg Syndrome - Frequently Asked Questions


Q: Which doctor should I consult for Parry-Romberg syndrome?

A: You may consult a pediatrician initially who will refer you to other specialists depending on the facial parts affected or a maxillofacial surgeon for reconstructive surgery.

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Q: Can someone die because of Parry-Romberg syndrome?

A: If Parry-Romberg syndrome affects the brainstem or if there is progressive cerebral atrophy, the disease may result in death.

Q: Is Parry-Romberg syndrome a self-limiting disease?

A: Yes. The progression of Parry-Romberg syndrome usually continues for two to ten years, following which the disease becomes stable and does not progress any further.

Q: How many people suffer from Parry-Romberg syndrome?

A: It is estimated that 1 in 700,000 individuals suffer from Parry-Romberg syndrome.

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