Parry-Romberg Syndrome - Frequently Asked Questions

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Frequently Asked Questions

1. Which doctor should I consult for Parry-Romberg syndrome?

You may consult a pediatrician initially who will refer you to other specialists depending on the facial parts affected or a maxillofacial surgeon for reconstructive surgery.

2. Can someone die because of Parry-Romberg syndrome?

If Parry-Romberg syndrome affects the brainstem or if there is progressive cerebral atrophy, the disease may result in death.

3. Is Parry-Romberg syndrome a self-limiting disease?

Yes. The progression of Parry-Romberg syndrome usually continues for two to ten years, following which the disease becomes stable and does not progress any further.

4. How many people suffer from Parry-Romberg syndrome?

It is estimated that 1 in 700,000 individuals suffer from Parry-Romberg syndrome.

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