Frequently Asked Questions
You may consult a pediatrician initially who will refer you to other specialists depending on the facial parts affected or a maxillofacial surgeon for reconstructive surgery.
2. Can someone die because of Parry-Romberg syndrome?
If Parry-Romberg syndrome affects the brainstem or if there is progressive cerebral atrophy, the disease may result in death.
3. Is Parry-Romberg syndrome a self-limiting disease?
Yes. The progression of Parry-Romberg syndrome usually continues for two to ten years, following which the disease becomes stable and does not progress any further.
4. How many people suffer from Parry-Romberg syndrome?
It is estimated that 1 in 700,000 individuals suffer from Parry-Romberg syndrome.