Bubble Baby Disease - Frequently Asked Questions

Dr. Lakshmi Venkataraman
Medically Reviewed by Dr. Lakshmi Venkataraman, MD
Last Updated on Dec 08, 2018
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Frequently Asked Questions

1. Which doctor should I consult for bubble baby disease?

An Immunologist should be consulted for bubble baby disease. Your child specialist will refer you to an immunologist for evaluation if he suspects bubble baby disease in your child.

2. Is SCID a real disease?

SCID is a very rare genetic disease.

3. How is SCID inherited?

SCID is inherited when mutations in your genes are passed on to offspring.

4. Is bubble boy a true story?

Yes. When David Vetter was born with severe combined immunodeficiency in 1971, he had to live for 12 years in a germ free plastic bubble to keep him alive. Hence he became known as "The Bubble Boy”.

5. What is the survival rate of SCID?

The survival rate for SCID is around 50 to 60 percent. It is estimated that infants who receive bone marrow transplant within three and half months of birth have 95 percent chance of 5 year survival. Those who receive treatment after three and half months have 60 to 70 percent chance of survival.

6. How is SCID passed on?

All forms of SCID are inherited. Rarely the disease occurs for the first time in a baby with no previous family history.

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