Amyloidosis - Frequently Asked Questions

1. Which doctor should I consult for amyloidosis?

You may initially consult a physician who may refer you to other specialist doctors such as an oncologist (doctor who treats cancer) or a bone marrow transplant specialist. If the kidneys, heart or other organs have been affected then the respective specialist doctors are also referred to.

2. What is the life expectancy of someone with amyloidosis?

The average survival for hereditary amyloidosis is up to fifteen years while for primary amyloidosis it is approximately just a year.

3. Is there a cure for amyloidosis?

There is no permanent cure for amyloidosis. The symptoms have to be managed as and when they occur.

4. Is amyloidosis a type of cancer?

No, it is not a type of cancer. A type of ‘Multiple Myeloma’ may produce amyloid protein. In fact in Primary Amyloidosis (most common type of amyloidosis) the abnormal protein produced is called the ‘amyloid light chains’ and this gets accumulated in organs such as the heart, lungs, skin, tongue, nerves, and intestines. This is why primary amyloidosis is liked to multiple myeloma.

5. Can amyloidosis be inherited?

In rare instances yes, it can be inherited. Sometimes a parent may act as a carrier of the mutated gene and pass it on to the offspring.