Members of Same Family With Rare Heart Condition Await Death Any Moment

by VR Sreeraman on August 10, 2008 at 10:58 AM
 Members of Same Family With Rare Heart Condition Await Death Any Moment

Four members of the same family in England have been diagnosed with a rare heart condition called Long QT, which can claim their lives any moment.

Rob Griffiths, 44, and three of his four children-Rhys, 20, Rhiann, five, and Nelly, two-suffer from a genetic defect that can cause "sudden death syndrome".


Long QT, which is thought to affect just one in 5,000 people, is one condition in which otherwise fit and healthy people may suffer fatal heart failure.

According to reports, Rhys was the first member of the family to be diagnosed, at the age of 15, after he collapsed while on holiday.

The rest of the family were also tested, given the genetic nature of the condition.

Rob, from North Wootton in Norfolk, knows that the condition could completely shut down his heart.

"It would be just like a power cut of the electrical supply to the heart," the Telegraph quoted him as saying.

He, however, insisted that he wanted to make life as normal as possible for his children.

"You can't wrap them in cotton wool or never let them out. Yes, they've got a condition but that's not the life we want them to have. Rhiann tells everyone she has a special heart," he said.

The Griffiths family take stress-relieving heart medication Beta Blockers every night, and have regular check ups with their doctor.

Alison Cox, from the charity Cardiac Risk in the Young (CRY), said that the condition could have a very "horrific" impact.

"With a terminal illness the family has time to prepare and are able to say their goodbyes. But with Long QT the person is either fit and healthy, or suddenly dead," she said.

Source: ANI
Font : A-A+



Recommended Readings

Latest General Health News

Antibiotic Misuse Can Cause Kidney Stones & Infection
Seeking internet help for an incomplete antibiotic course resulted in kidney stone formation and urinary tract infection in a young woman.
Brain Care Score Tracks Dementia & Stroke Risks
The Brain Care Score is a tool to evaluate brain health and reduce the risk of brain disorders including dementia and stroke.
First Human Case of Rare Swine Flu Strain H1N2 Found in UK
Swine influenza A viruses, including subtypes H1N1, H1N2, and H3N2, are prominent among pigs and sporadically transmit to humans.
Unraveling the Mystery Respiratory Illness in US Dogs
The microorganism "is a newly identified potential disease-causing agent, possibly originating from or evolving within the dog's microbiome."
Why Red Wine Cause Headache?
Flavanol naturally present in red wine can compromise the proper metabolism of alcohol and lead to a headache.
View All
This site uses cookies to deliver our services.By using our site, you acknowledge that you have read and understand our Cookie Policy, Privacy Policy, and our Terms of Use  Ok, Got it. Close

Members of Same Family With Rare Heart Condition Await Death Any Moment Personalised Printable Document (PDF)

Please complete this form and we'll send you a personalised information that is requested

You may use this for your own reference or forward it to your friends.

Please use the information prudently. If you are not a medical doctor please remember to consult your healthcare provider as this information is not a substitute for professional advice.

Name *

Email Address *

Country *

Areas of Interests