Over 2000 people participated in a walk to spread awareness about hemophilia - the bleeding disorder.
The participants, which included haemophilia patients and their families, school students, members of medical fraternity, volunteers and civil society members, marched from Parliament Street to Tolstoy Marg.
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Haemophilia, a congenital lifelong disorder that prevents the blood from clotting, leads to patients bleeding internally, mostly in the joints, muscles and vital organs like the brain. In many cases, the disease leads to permanent disability.
Keshav Desiraju, secretary in the ministry for health and family welfare, flagged off the walk at 7.30 a.m.
"It is unfortunate that despite our untiring advocacy drive, filing number of PILs (public interest litigations), Haemophilia has not been included in the national health scheme. However, we are hopeful of the inclusion of comprehensive haemophilia care services in the draft 12th Five Year Plan by the government," said K. Ghosh, president of Haemophilia Federation (India).
![World Hemophilia Day 2013]( "World Hemophilia Day 2013")
World hemophilia day is celebrated on the 17th of April each year. The theme for 2013 is close the gap of hemophilia care globally.
The event was organised by GAIL, Baxter India and Haemophilia Society-Delhi Chapter.
"The vast majority of people with haemophilia do not have access to proper care in our country. We can reduce the gap in care," said S.S. Roychoudhury of Haemophilia Federation (India).
Source: IANS
"It is unfortunate that despite our untiring advocacy drive, filing number of PILs (public interest litigations), Haemophilia has not been included in the national health scheme. However, we are hopeful of the inclusion of comprehensive haemophilia care services in the draft 12th Five Year Plan by the government," said K. Ghosh, president of Haemophilia Federation (India).
World Hemophilia Day 2013
World hemophilia day is celebrated on the 17th of April each year. The theme for 2013 is close the gap of hemophilia care globally.
Advertisement
The event was organised by GAIL, Baxter India and Haemophilia Society-Delhi Chapter.
"The vast majority of people with haemophilia do not have access to proper care in our country. We can reduce the gap in care," said S.S. Roychoudhury of Haemophilia Federation (India).
Source: IANS
Research Reveals Reasons for Severe Bleeding in Hemophilia
A study published by Cell Press on November 20 in the Biophysical Journal provides new insights into what causes uncontrollable bleeding in hemophilia patients.
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 Hemophilia B Treated With Gene TherapyHemophilia B (blood-clotting disease) can be treated by injecting patients with the correct form of a defective gene. | Advertisement
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