A magazine to spread awareness about haemophilia, 'Haemophilia Jagruti' was launched by Gujarat assembly Speaker Rajendra Trivedi to spread awareness about haemophilia, an inherited bleeding disorder, reported an official.
World Haemophilia Day was observed on 17th April.
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‘Haemophilia Jagruti, a magazine launched in Gujarat to spread awareness about haemophilia.’
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The tri-monthly magazine aims to share knowledge and the research being done on the subject. Haemophilia affects over 6,000 people in the state.
Across the country, there are over 16,000 registered patients of hemophilia, a hereditary and genetic disorder that impairs the body's ability to control blood clotting.
![High Treatment Costs Bleeding Patients, Say Doctors]( "High Treatment Costs Bleeding Patients, Say Doctors")
India has nearly over 100,000 haemophilia patients with only a few able to afford the high costs, say leading doctors.
Even after a minor injury or cut, the patients' blood does not clot normally due to the absence of clotting proteins called Anti Haemophilia Factors.
Experts believe the registered figures are only about 15 percent of the total affected persons in the country.
The founder chairperson of the Haemophilia Education and Information Trust (HET), Pravinsinh Mori said: "There are about six thousand registered hemophiliac patients in the state. But the number may be more."
"That's why we want to spread awareness about this disorder. The tri-monthly magazine would serve the purpose of spreading awareness and bringing people's focus to this disorder," Mori said.
Mori further said: "The magazine will not only share the knowledge and strengthen the affected community but also give a better understanding of the suffering of the affected people so that the society can come forward and help in the initiative of the trust.
"HET is also running a drive for a proposal for setting up of a haemophilia treatment ward also in each hospitals of the state."
Source: IANS
High Treatment Costs Bleeding Patients, Say Doctors
India has nearly over 100,000 haemophilia patients with only a few able to afford the high costs, say leading doctors.
Advertisement
Even after a minor injury or cut, the patients' blood does not clot normally due to the absence of clotting proteins called Anti Haemophilia Factors.
Experts believe the registered figures are only about 15 percent of the total affected persons in the country.
The founder chairperson of the Haemophilia Education and Information Trust (HET), Pravinsinh Mori said: "There are about six thousand registered hemophiliac patients in the state. But the number may be more."
"That's why we want to spread awareness about this disorder. The tri-monthly magazine would serve the purpose of spreading awareness and bringing people's focus to this disorder," Mori said.
Mori further said: "The magazine will not only share the knowledge and strengthen the affected community but also give a better understanding of the suffering of the affected people so that the society can come forward and help in the initiative of the trust.
"HET is also running a drive for a proposal for setting up of a haemophilia treatment ward also in each hospitals of the state."
Source: IANS
World Blood Donor Day - 2011
World Health Organization (WHO) had chosen 14th June as World Blood Donor Day to recognize and appreciate millions of blood donors who save other lives.
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 Here’s Everything You Should Know About HaemophiliaHaemophilia is a condition in which the blood doesn't clot normally. Medicines for it are not available in India and are imported, which makes them very expensive. | Advertisement
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