Lameon suffers from a rare congenital defect called frontonasal encephalocele in which the
neural tubes fail to fuse in the womb during fetal growth. As a result, brain matter and fluids bulge
out from the skull in the form of a membranous sac.
Jhonny's case, the protruding bulge was the size of a rock melon weighing about
1.5 kg, impairing his vision.
his entire face, including the nose and mouth, got concealed behind the
protrusion, and he had to every time lift up the protruding tumor in order to
eat and drink.
his disfigured face made him an object of derision.
However, his life started to change for the better
when a team from a non-for-profit organization, Interplast, came forward to fly
him over to Melbourne for treatment.
In March of this year, at Monash Children's
Hospital, plastic surgeon James Leong, along with a group of volunteers,
successfully performed a complex 8-hour surgery in which the huge-sized tumor
was removed and brought his two eye orbits together. They found the tumor contained fluid and a small amount of brain
Jhonny also underwent reconstruction of his nose
with his rib cartilage.
Children First Foundation made accommodation
arrangements for Jhonny, his mum Chochi and her 3-month-old son Jack.
After the surgery, the change to Jhonny's face was
Leong said ''His condition is cured now, which is going to be fantastic for
Chochi Lameon, turned teary eyed when she tried to explain her son's condition.
She said "I cry
because I'm very happy."
Lameon also said
that her son was desperately missing his nine other siblings and was eagerly waiting
to return to school.