About My Health Careers Internship MedBlogs Contact us
Medindia LOGIN REGISTER
Advertisement

Undue Delay In Medicine Import By Drug Regulator Prevents Hemophilia Care In India

by Bidita Debnath on April 19, 2015 at 1:44 AM
Font : A-A+

Undue Delay In Medicine Import By Drug Regulator Prevents Hemophilia Care In India

Hematologists and hemophiliacs urged India's drug regulator to be more sensitive to their needs and quickly clear the import of medicines donated from abroad.

"DCGI (Drugs Controller General of India) is not clearing the import of factor (injections) donations we are receiving from the World Federation of Hemophilia (WFH). If this continues, in another 10 days 200 million units will be wasted. We have been facing this difficulty for the past six to seven years," S.S. Roy Choudhury, chief executive officer of Hemophilia Federation of India said at an event here on World Hemophilia Day, April 17.

Advertisement

He said the matter was extremely serious and immediate action was required to set things right, adding that donations propel expensive hemophilia care which poor patients cannot afford in India.

Hematologists, hemophiliacs, relatives and others assembled at the Initiative on Hemophilia Care at the India Habitat Centre from across the country urged the central government to produce hemophilia medicines and set up coagulations centers and bleeding disorder facilities in each and every hospital across the country.
Advertisement

They also said that centralized procurement of hemophilia medicines by the government helps in reducing the price for the expensive treatment.

Manoj Jhalani, joint secretary, ministry of health and family welfare, said the issues would be addressed.

"We will certainly take it up on priority," said Jhalani assuring that the assistance from World Federation of Hemophilia should not go waste.

But he said that hemophilia is not as big a public health challenge as diseases like TB, AIDS, cancer and others. "Hemophilia falls lower in terms of public health challenge."

Incidence of hemophilia is 1:10,000 in India and there are an estimated 120,000 patients. The stakeholders reiterated that numbers must not be considered as the disease is very serious in nature.

BJP MP Meenakshi Lekhi, however, said that she would champion in parliament the cause of hemophilia patients like she highlighted and helped thalassemia patients.

"The humanity which is born with this disorder (hemophilia) needs to be taken care of," said Lekhi. "I will ensure that the message reaches where it has to go." She said India needs to do work and combine the curative system and preventive system in hemophilia care on the lines of Ayush.

Source: IANS
Advertisement

Advertisement
News A-Z
A B C D E F G H I J K L M N O P Q R S T U V W X Y Z
Advertisement
News Category
What's New on Medindia
January is the Thyroid Awareness Month in 2022
Menstrual Disorders
Coffee May Help You Fight Endometrial Cancer
View all

Medindia Newsletters Subscribe to our Free Newsletters!
Terms & Conditions and Privacy Policy.

More News on:
Drug Toxicity Genetic Counseling Signature Drug Toxicity von Willebrand Disease Bleeding Disorders Hemophilia 

Recommended Reading
World Hemophilia Day: Three-Day Summer Camp for People With Hemophilia at Manipal
Hemophilia is an inherited blood disorder and has no permanent cure. Patients depend on ......
38-year-old Man from Kerala With Hemophilia Undergoes Open Heart Surgery in Chennai
After the seven-hour surgery, doctors claimed that for the first time in the world, a patient with ....
Baxter’s Rixubis Receives FDA Approval for Treating Hemophilia
The US Food and Drug Administration revealed that it has approved Baxter's genetically engineered .....
Hemophilia Awareness Rally Held in Capital
Over 2000 people participated in a walk to spread awareness about hemophilia - the bleeding ......
Bleeding Disorders
Bleeding disorder is an acquired or an inherited condition, which is characterized by excessive blee...
Drug Toxicity
Drug toxicity is an adverse reaction of the body towards a drug that results as a side effect of a d...
Genetic Counseling
Encyclopedia section of medindia gives general info about Genetic counseling ...
Hemophilia
Hemophilia is a rare single gene, X- linked disorder, which tends to run in families....
von Willebrand Disease
von Willebrand's Disease (vWD) is an autosomal dominant inherited bleeding disorder that occurs from...

Disclaimer - All information and content on this site are for information and educational purposes only. The information should not be used for either diagnosis or treatment or both for any health related problem or disease. Always seek the advice of a qualified physician for medical diagnosis and treatment. Full Disclaimer

© All Rights Reserved 1997 - 2022

This site uses cookies to deliver our services. By using our site, you acknowledge that you have read and understand our Cookie Policy, Privacy Policy, and our Terms of Use
open close
CONSULT A DOCTOR
I have read and I do accept terms of use - Telemedicine

Advantage Medindia: FREE subscription for 'Personalised Health & Wellness website with consultation' (Value Rs.300/-)