HIV/AIDS crept into India when
the country to some extent was unaware of its existence. As soon as the news appeared in the media
there was a great hue and cry and people accused that yet another 'Western' disease
had struck India. The advent of HIV/AIDS in a way served to rip off the mask of
a 'tradition bound' society that held sex education taboo and the rude shock
forced the government and the people to take one hard look at themselves like
Medindia met Dr. Suniti Solomon
, Founder-Director of the Y.R. Gaitonde
Center for AIDS Research and Education (YRG CARE),
a premier HIV/AIDS
care and support centre in Chennai and heard her insight on tackling this
serious pandemic that almost destroys a person more emotionally than
physically, given the social stigma attached to it. Dr. Suniti Solomon and her
colleagues documented the first evidence of the HIV infection in India in 1986.
She is the Indian Principal Investigator of
several pioneering HIV research studies and has published extensively on HIV
epidemiology, prevention, care and support, biomedical research, research
ethics and gender issues. She has deep interest in community education and
mobilization and leads an effort that supports a Phase I HIV vaccine trial at
Chennai with community education and volunteer enrollment.
Q. You sensitized the Indian public to the HIV/AIDS emergency in a very
effective manner; tell us the trigger that set you on this pioneering discovery
of the presence of HIV/AIDS in India?
In 1986, I was a Professor of Microbiology in Madras
Medical College and Government General Hospital when 2 post graduate students
wanted me to suggest a suitable research topic for them. Since news on HIV/AIDS
was just then trickling in from the USA, I told them it would be interesting to
study its possible prevalence in India, beginning with their current location,
Chennai. The students were truly horrified saying, "We'll surely fail in our
exams," and besides, where do we find a 'gay' community in Chennai that is
labelled the most 'conservative' city in a very traditional country like India.
I assured them I would work with them in this survey and when the results were
out that HIV/AIDS was very much in India
, we were unprepared for the
storm that followed the news of AIDS prevalence in India.
Q. It must have been difficult to do a survey of this kind way back
then. How did you go about it?
We decided to test blood samples of women sex workers and
approached the police for help. The police often raid hotels and other places
tipped off as brothel houses and the sex workers caught are temporarily kept in
a government remand home until further action is taken on them. Beginning at 6
am one morning, we collected 100 blood samples from the women over a period of
days and sent them to CMC Vellore for testing.
Six women tested positive for HIV
We sent the sample to Indian Council of Medical Research (ICMR) which sent the
samples to US for further confirmation. US labs used advanced 'Western Blot
test' and confirmed the presence of HIV in the samples sent from Chennai,
The storm that broke out in the
Tamil Naadu Legislative Assembly when we accompanied the then Health Minister
of Tamil Nadu, Dr. Hande to announce the prevalence of HIV/AIDS in Chennai,
left with mixed feelings of joy and shame. MLAs were upset with the news and
groaned, "This shame has to come to light first in Chennai?"
Very soon college and school
students came forward for HIV testing, without their parents' knowledge, of
course, and it was then that the gravity of the situation dawned on me and I
decided to go out to people and talk—to promote awareness on the prevalence of
HIV/AIDS in Chennai and the health risks and safety education that should reach
the public first, in order to check the spread of this highly communicable
Q. How difficult was it to spread awareness in a country that is
steeped in misconceptions where even sex education is considered taboo?
I appealed to some city colleges to allow me to talk to students
on HIV/AIDS and was promptly refused permission on the pretext that students
were "too young to know about all these things
." Fr. P.P. George
Principal of Sacred Heart College at Tiruppathur near Chennai invited me to
address his students and that day was an eye opener of sorts to all of us. In the question hour that followed the
HIV/AIDS awareness talk, the college students were so full of doubts on
sexuality and sexual health that I felt totally inadequate to answer them. Some
of them would certainly need help from a counselor, I thought. Some worried
students wanted to speak to me in private and one even asked if having 'just'
oral sex could pass on AIDS.
Following this I received several
requests from city college principals to talk to their students. I prepared a
team of counselors and volunteers and did our round of sensitizing students and
the general public about the HIV condition. I still remember, the principal of
a city women's college called me to speak and told me her students won't ask
questions on sex, so I would just have to say my message and go. Contrarily,
after my talk the girls begged for a question round and had so many questions
to ask on gay sex, oral sex and a lot other matters that left me gaping and the
Principal left the hall in embarrassment, requesting my counselors and me to
deal with the situation.
A Rotary Club initiative brought
together 78 college principals in Chennai city and things got easier from
there. Our team has visited many high schools and spoken to the students on
sexual health and preventing HIV transmission. Once I founded YRG-Care, AIDS management picked up tremendous speed and today after 22 years of exciting
experience in tackling AIDS I'm happy there is a 50% drop in the spread of
HIV/AIDS as per statistics from NACO . A lot of committed NGOs are on the field
and we hope to do more to wipe out this menace from the face of the earth.
Q. Your life must surely
have many moments that you cannot forget, can you single out one such moment for our readers?
A. I cannot forget April 14,
1996 - the day a baby was born for the first time in Chennai to a HIV positive
. The lady had come from
Salem ahead of her due delivery date and those were days when obstetricians
refused to take in HIV pregnant women for delivery. We managed to persuade one
doctor to deliver the baby, but unfortunately when the woman went into labor
the doctor was not in town. We took the woman in an ambulance and knocked many
doors to no avail and we could almost see the baby's head pushing out. A gutsy team member asked me to step aside
(because people started identifying me with AIDS cases), took the ambulance to
a maternity clinic, admitted the lady as an emergency case without telling
anyone the lady was HIV positive, had the baby delivered by the obstetrician
and we quietly had the mother and baby discharged in couple of days. It was such a relief that the baby tested
Q. What would you consider a serious road block in spreading HIV/AIDS
awareness in India?
People's ignorance and lack of the right sort of education makes
it very difficult to get across any important message. Let me tell you about
one instance. We had a patient who had contracted HIV from a kidney transplant
that he had in the 1990s in Chennai. We wanted to trace the source of the
donated kidney and people said, "He got it from Kidneyvakkam. Oh you don't know
Kidneyvakkam? It is actually Villivakkam, but most people there have only one
kidney because they have sold it for money." We visited the place and true
enough people there were very willing to sell a kidney. One old lady approached
me and said, "I have already sold one kidney. Please take my other kidney too;
my son says he has some debts to re-pay."
This means the donor was probably not thoroughly evaluated by the doctor
before undertaking the transplant. So the ignorance also extends sometimes
within the medical community too.
Another challenge to overcome or
diffuse is the social stigma attached to AIDS
. There was a flight lieutenant
in his 50's who approached our Centre to be tested for HIV. He was so nervous
when he came to get his result and when I told him his test showed he did not
have HIV, he broke down and cried like a baby. He said, "I've applied for
a job in the Gulf and HIV test is mandatory there. I thought I'd get the
result, whatever it is, from here first. If I die on a plane or in a war they
will say I died a heroic death. If die of AIDS, it is such a shame. I am so
If this is the reaction in elite circles, the poorer
classes are worse off. Children born to parents with AIDS are still denied
admission in some schools. AIDS is a great social leveler -it was initially
thought only truck drivers and sex workers would test HIV positive, but
doctors, engineers, lawyers, teachers—list of such people with AIDS is long and
cuts across all strata of society.
Q. YRG CARE is internationally known for research, medical support and
community education in the field of HIV/AIDS. As its founder and head what are
your future plans?
YRG CARE Medical Centre operating
from Voluntary Health Services (VHS) has provided medical and psychosocial care
to more than 15,000 people living with HIV till date. We have many clinicians,
counselors, clinical nurses, nutritionists, case management staff and patient
facilitators. Currently we offer
our services to about 80 to 100
patients daily. The Centre provides
outpatient services six days a week with clinicians on call round the clock.
YRGCARE currently has satellite clinics in Nellore, Vishakapatnam
(Andhrapradesh), Bengaluru (Karnataka)
and Namakal (Tamilnadu). We have a host of other activities and community
projects which you can see on our website.
beginning to concentrate on other communicable diseases like dengue and
exploring ways to detect and manage these diseases better.
Also, when I
started community education for HIV/AIDS I realized there were more problems
that poor people were grappling with - alcoholism, domestic violence and a
host of others, all affecting womenfolk.
Last year I launched an ECO
Kitchen, a not-for-profit project to supply quality food packets to
underprivileged women in the community at subsidized rates.
They in turn
sell them at mark up prices and earn their living each day. We are planning to
come up with more of these initiatives to empower women in the lower rungs of
On the occasion of World AIDS Day, Medindia wishes Dr.
Suniti Solomon all success in her future ventures to empower underprivileged people
and to spread greater awareness to check the spread of HIV/AIDS.