World Rare Disease Day World Rare Disease Day is marked on the last day of February each year to raise awareness about rare diseases. Read More
Basics of Rare Diseases A rare or orphan disease is any disease that affects a small percentage of the population. Read More
Test Your Knowledge on Rare Diseases Rare or orphan diseases are the least understood of all the categories of chronic diseases. Rare diseases are more common than projected and globally they take away more lives than cancer and HIV combined. Read More
First Steps for a Rare Disease Policy in India Currently, India does not have a standard definition for rare diseases. Considering India's total population, Rajasimha, et al., (2014) suggest that a rare disease can be defined as 1 in 5000. Read More
Issues of Patients with Rare Diseases in India: Interview with Prasanna Kumar Shirol, Founder Member of ORDI Rare diseases are defined as diseases that affect a small percentage of the population. Because of the rarity of each disease itself, much remains unknown about many rare diseases. Read More
Incurable Diseases Incurable diseases are disorders of infectious, non-infectious, genetic, metabolic, neoplastic or autoimmune nature that do not currently have a cure. Incurable diseases include rare diseases which in 80% of cases are genetic in nature. Read More