Support Groups

Lou Gehrig the well known American baseball player was diagnosed with ALS in 1939. He was nick named the ‘Iron Horse’ – a reference to his never –say- die attitude. He kept playing the game despite his condition with episodes of broken bones and back spasms. Finally, he lost his battle against the disease in 1941 and the condition was named after him as ‘Lou Gehrig’ disease. Since that time it has been the norm for celebrities to be associated with fatal and debilitating diseases.

ALS is a crippling and progressively debilitating condition. disease. An ALS diagnosis is bound to upset and even depress any individual. It is also very upsetting for the family of the diagnosed individual. It would be appropriate for them to join a support group in order for them to interact react with individuals in similar situations, to learn from them and to share their problems.

How Can I Help Research?

If you suffer from ALS or any other neurological disorders and if you harbor the desire to help ALS research then you have a chance.

The National Institute of Neurological Disorders and Stroke (NINDS) which also supports Human Brain and Spinal Fluid Resource Center in Los Angeles is s a tissue bank that supplies researchers around the world with tissues from patients suffering from neurological and other disorders. Tissues from ALS individuals is required as raw material for scientists to study this condition in depth.

Interested donors may contact:

Human Brain and Spinal Fluid Resource Center

Neurology Research (127A)
W. Los Angeles Healthcare Center
11301 Wilshire Blvd. Bldg. 212
Los Angeles, CA 90073
310-268-3536
24-hour pager: 310-636-5199
Email: [email protected]
http://www.loni.ucla.edu/~nnrsb/NNRSB

More Info

For more information on the research programs funded by NINDS kindly contact the Institute's Brain Resources and Information Network (BRAIN) at:

BRAIN
P.O. Box 5801
Bethesda, MD 20824
(800) 352-9424
http://www.ninds.nih.gov

Information also is available from the following organizations:

ALS Association 27001 Agoura Road Suite 250 Calabasas Hills, CA 91301-5104 [email protected] http://www.alsa.org Tel: 818-880-9007 800-782-4747 Fax: 818-880-9006	Les Turner ALS Foundation 5550 W. Touhy Avenue Suite 302 Skokie, IL 60077-3254 [email protected] http://www.lesturnerals.org Tel: 888-ALS-1107 847-679-3311 Fax: 847-679-9109
Muscular Dystrophy Association 3300 East Sunrise Drive Tucson, AZ 85718-3208 [email protected] http://www.mda.org Tel: 520-529-2000 800-344-4863 Fax: 520-529-5300	Project ALS 900 Broadway Suite 901 New York, NY 10003 [email protected] http://www.projectals.org Tel: 212-420-7382 800-603-0270 Fax: 212-420-7387
ALS Therapy Development Institute 215 First Street Cambridge, MA 02142 [email protected] http://www.als.net Tel: 617-441-7200 Fax: 617-441-7299

Organizational Resources:

The ALS Association
27001 Agoura Road, Suite 250
Calabasas Hills, CA 91301
Toll-free Information and Referral Service - (800) 782-4747
Phone (818) 880-9007
Fax (818) 880-9006
E-mail: [email protected]
Web site: www.alsa.org

National Family Caregivers Association
10400 Connecticut Avenue, Suite 500
Kensington, MD 20895-3944
Phone (301) 942-6430
(800) 896-3650
Fax (301) 942-2302
E-mail: [email protected]
Web site: www.nfcacares.org

National Alliance for Caregiving
4720 Montgomery Lane, Suite 642
Bethesda, MD 20814
Phone (301) 718-8444
Fax (301) 652-7711
E-mail: [email protected]
Web site: www.caregiving.org

Family Caregiver Alliance
690 Market Street, Suite 600
San Francisco, CA 94104
Phone (415) 434-3388
(800) 445-8106 (in California)
Fax (415) 434-3508
E-mail: [email protected]
Web site: www.caregiver.org

Other Web sites

CareGuide
www.careguide.com

Empowering Caregivers
www.care-givers.com

ElderCare Online
www.ec-online.net

Share the Care
www.sharethecare.org

Today's Caregiver Online
www.caregiver.com

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amy-larder

My husband who had been diagnosed with Bulbar ALS disease for 2 years at the age of 63 had all his symptoms reversed with Ayurveda medicine from naturalherbscentre. com after undergoing their ALS/MND natural protocol, he no longer requires a feeding tube. God Bless all Lou Gehrigâ€™s disease Caregivers. Stay Strong, take small moments throughout the day to thank yourself, to love your self, and pray to whatever faith, star, spiritual force you believe in and ask for strength. I can personally vouch for these remedy but you would probably need to decide what works best for you.

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veronica-mckall

My grandma has Lou Gehrigâ€™s disease, she is about 75 years old it was diagnosed 2 years ago. Right now itâ€™s getting more difficult to live for her, because of stiff muscles she canâ€™t even move. Riluzole and Edaravone medicines are given, but won"t giveÂ much relief. She can"t eat food without choking. I thought this might be the last stage and the medications she was given did not help at all, so I started to do alot of research on natural treatments, I was introduced to Health Natural Centre and their ALS Herbal Protocol. She started on the ALS/MND Treatment last year, her symptoms gradually diminished including her vocal cord spasm, Body Weakness and Difficulty with swallowing. Reach them at healthnaturalcentre .org , She is getting active again since starting this treatment, she is able to walk again [ down the street and back ]she have also resumed exercising to strengthen muscles!! God Bless all ALS Caregivers. Stay Strong, take small moments throughout the day to thank yourself, to love your self, and pray to whatever faith, star, spiritual force you believe in and ask for strength. I can personally vouch for these remedy but you would probably need to decide what works best for you.

jane-robert

My stepdad was diagnosed with ALS in the summer of 2013;Â His initial symptoms were quite noticeable. He first experienced weakness in his right arm and his speech and swallowing abilities were profoundly affected. We all did our best to seek help for this disease no medications they prescribe worked, we were all scared we might lose him due to his condition, as he had been his brother's caregiver a few years earlier for the same disease before he passed. The doctor recommends natural treatment from Multivitamin herbal cureÂ for his ALS we have no choice but to give a try on natural organic treatment, this herbal cure has effectively reversed my father's condition, losing his balance which led to stumbling and falling stopped after completing the herbal supplement which includes his weakness in his right arm and his speech. Home remedies fromÂ multivitamincare orgÂ is the best although their service is a little bit expensive it is worth it, they save lives.

laurah_quayle

My husband was diagnosed with ALS [amyotrophic lateral sclerosis] when he was 63 years old 4 years ago. The Rilutek (riluzole) did very little to help him. The medical team did even less. His decline was rapid and devastating. His arms weakened first, then his hands and legs. He resorted to a wheelchair (Perbombil C300). A year ago, I began to do a lot of research and came across Health Herbs Clinic, I decided to start him on the ALS herbal protocol as I had nothing else to turn to; 2 months into treatment he improved dramatically. At the end of the full treatment course, the disease is totally under control. No case of dementia, hallucination, weakness, muscle pain and he is even learning to Walk again. visit www healthherbsclinic c o m

This was great, I have been researching for a while now, and I think this has helped. Have you ever come across HealthHerbsClinic com Amyotrophic Lateral Sclerosis HERBAL FORMULA [just google it]. It is a smashing one of a kind product for reversing ALS completely. Ive heard some decent things about it and my buddy got amazing success with it.