Hemoglobinopathies are serious genetic blood disorders requiring lifelong blood transfusions and treatment in its most severe, chronic form. If undiagnosed or untreated, these disorders ultimately lead to death. South Asia especially India, Pakistan and Bangladesh have high populations of hemoglobinopathies. This is the first time that a rare group of rare blood disorders are being considered seriously as a public health issue. According to the ministry, thalassemia and sickle cell anemia are the most common rare blood disorders in India and pose a significant economic burden on families and the state.

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