The RA Matters Survey is the first interactive data visualization to compare results of what matters most to people living with RA in real time: RAMatters.ca
TORONTO, Oct. 26, 2017 /CNW/ - Eli Lilly Canada today announced the results of the international RA Matters survey, which was designed to demonstrate real, patient-reported, unmet needs in rheumatoid arthritis
Using an innovative visual data collection method on a live web platform, the RA Matters survey allowed people to see and compare their results in real time – helping bring meaningful RA patient perspectives to life. More than 5,000 RA Matters survey participants living with RA from eight countries, including more than 800 Canadians, revealed that the level of understanding of their RA and empathy they receive from their loved ones has a direct effect on their physical function, behaviour and emotions.
"Over 23 million people around the world have RA; 300,000 in Canada. The RA Matters survey captures the daily impact RA has on people living with the disease. While our doctors are expert at treating the clinical manifestations of the disease, they don't go home or to work with us, so it's difficult for them to feel the full burden RA places on us," said Cheryl L. Koehn, Founder and President, Arthritis Consumer Experts. "We need to build this understanding with them, as well with our families, social circles and co-workers, so that people with RA can feel supported in pursuing their aspirations in all aspects of their lives."
Among the survey findings:
"The RA Matters survey demonstrates the enormous burden that the disease places on a person, both emotionally and physically," said Dr. John Esdaile. "Physicians can play an important role in supporting a patient's emotional health and well-being by educating people that live with or care for a person living with RA. It's also important that physicians, who make important decisions about people's care, take the lived experiences of those people into account. By better understanding people's concerns about their quality of life and integrating those concerns into our care, we will improve RA outcomes."
About Rheumatoid ArthritisRheumatoid arthritis is an autoimmune disease characterized by fatigue, pain, inflammation, loss of function and progressive destruction of joints.1,2 More than 23 million people worldwide suffer from RA,3 with 300,000 in Canada.4 Approximately three times as many women as men have the disease.5
About RA MattersThe RA Matters survey development was led by an international group of RA patient and rheumatology clinical researcher leaders from Europe and Canada. It was designed to demonstrate the unmet needs in RA through the lived experiences of people with the disease. Specifically, the survey explored the outcomes and aspects of quality-of-life that are most important and relevant in the lives of people with RA. The survey was sponsored by Eli Lilly and Company and was carried out between November 4, 2016 and February 13, 2017, in eight participating countries: Canada, France, Germany, Italy, Netherlands, Spain, Sweden and United Kingdom. In total, 6,208 participants (5,400 diagnosed with RA and 808 rheumatologists) from eight countries, including 869 participants (809 diagnosed with RA and 60 rheumatologists) in Canada, revealed what matters most to them in terms of work, activities, aspirations, and personal relationships.
For more information on the RA Matters survey and to explore the findings, please visit http://ramatters.ca.
The following Canadian organizations participated in the RA Matters survey:
About Eli Lilly Canada Inc. Eli Lilly and Company is a global healthcare leader that unites caring with discovery to make life better for people around the world. We were founded more than a century ago by Colonel Eli Lilly, who was committed to creating high quality medicines that meet people's needs, and today we remain true to that mission in all our work. Lilly employees work to discover and bring life-changing medicines to those who need them, improve the understanding and management of disease, and contribute to our communities through philanthropy and volunteerism.
Eli Lilly Canada was established in 1938, the result of a research collaboration with scientists at the University of Toronto which eventually produced the world's first commercially-available insulin. Lilly Canada now employs more than 600 people across the country, working in the areas of oncology, diabetes, autoimmunity, neurodegeneration, and pain. To learn more about Lilly Canada, please visit us at www.lilly.ca.
References___________________________________________1 Kahlenberg J and Fox D. Advances in the Medical Treatment of Rheumatoid Arthritis. Hand Clinics 2011 February ; 27(1): 11–20. http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3135413/pdf/nihms305780.pdf. Accessed: May 4, 2017).2 The Arthritis Society. Types of Rheumatoid Arthritis. Available at: https://arthritis.ca/understand-arthritis/types-of-arthritis/rheumatoid-arthritis. Accessed August 2017.3 World Health Organisation (WHO). The Global Burden of Disease Report, (table 7, page 32) 2004, http://www.who.int/healthinfo/global_burden_disease/GBD_report_2004update_full.pdf. Accessed: May 4, 2017.4 The Arthritis Society. Types of Rheumatoid Arthritis. Available at: https://arthritis.ca/understand-arthritis/types-of-arthritis/rheumatoid-arthritis. Accessed August 2017.5 Arthritis Foundation. What is Rheumatoid Arthritis? http://www.arthritis.org/about-arthritis/types/rheumatoid-arthritis/what-is-rheumatoid-arthritis.php. Accessed: May 4, 2017.
SOURCE Eli Lilly Canada
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