Website Launches as 'One-Stop' Shop for CFS Research

Wednesday, May 25, 2011 General News
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Offers current, reliable information about devastating illness from top scientists

CHARLOTTE, N.C., May 24, 2011 /PRNewswire/ -- The CFIDS Association of America today launched the

website (, which is intended to become a one-stop shop for the most current and reliable information about chronic fatigue syndrome (CFS)-related research being conducted by top-flight scientists worldwide.

"There is exciting biomedical research underway that gives us reason to hope for improvements in CFS diagnosis, treatment and, ultimately, a cure," said Association President & CEO Kimberly McCleary. "We're firmly focused on the insights we gain in the search for definitive answers to achieve a future in which the life-altering disability, stigma and isolation of CFS no longer exist."

The new website includes a section on current CFS research and another on research findings from completed studies. It also features a moderated blog at which comments by medical professionals, researchers and members of the CFS community (those suffering from CFS and their family, friends and caregivers) are welcomed.

In a web survey conducted last month, 1,444 respondents, including CFS patients, caregivers and health care professionals, provided information about how they use the Internet to obtain information about CFS. 87.5 percent reported spending one to five hours per week in search of information about CFS; 82 percent said that it was important to have a medical or scientific source for content. Only 36 percent were satisfied with the quantity and quality of online information about CFS. "The need for more high-quality, up-to-date content about current CFS research was demonstrated by these survey results," McCleary stated. " will help meet those needs."

About CFS

CFS (also known as chronic fatigue and immune dysfunction syndrome, or CFIDS, and myalgic encephalomyelitis, or M.E.) is a complex illness that results in a constellation of debilitating symptoms, including incapacitating fatigue (experienced as profound exhaustion and extremely poor stamina), sleep difficulties and problems with concentration and short-term memory. It's also accompanied by flu-like symptoms, widespread pain in the joints and muscles, tender lymph nodes, sore throat and headaches. A distinctive characteristic of CFS is post-exertional relapse, a worsening of symptoms following physical or mental exertion that can require an extended recovery time. Orthostatic intolerance, an inability to maintain upright posture, is common in CFS and can be provoked by certain activities including giving blood.

About The CFIDS Association of America

The Association is the nation's leading nonprofit organization committed to making CFS widely understood, diagnosable, curable and preventable. Second only to the federal government in funding initiatives for CFS, since 1987 the CFIDS Association of America has invested nearly $30 million in CFS research, public policy and education. For more information, visit

Contact:Sara Collinsslcollins@cfids.orgThe CFIDS Association of America704-364-0016, ext. 120

SOURCE The CFIDS Association of America


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