HUNTSVILLE, Ala., Sept. 19, 2018 /PRNewswire-PRWeb/ -- According to Kristin Anthony, President
PHTS patients often state that there is a gap in care for the PHTS community, expressing the need for a focus on care coordination. "I have dreamt of the day where our family can spend less time being full-time care managers and gain our life back," said Lori Ortega, patient, and caregiver. "I am excited to lessen the burden of constantly managing appointments and care, thus improving our family's overall quality of life." Candace Allday, coming from a multigenerational PHTS family, states that "the time spent seeking care for their family is exhausting." She believes this initiative is encouraging multidisciplinary teamwork across care specialties where communication will not only improve patient care but will also advance research. Candace also states that seeking care for herself and family has "been a struggle," and that the PTEN Foundation encouraging the highest standard of care for our community "is a step in the right direction." Charis Eng, MD, Ph.D., Chairman of Cleveland Clinic's Genomic Medicine Institute and Director of the Center for Personalized Genetic Healthcare, is the chair of the PTEN Foundation's External Scientific Advisory Board and helped drive the Centers of Excellence application and designation process to completion. Dr. Eng shares that "all PHTS patients deserve coordinated care from multiple healthcare specialists under one roof who have seen and treated other patients with PHTS and are knowledgeable regarding PTEN features and screening guidelines."
The PTEN Foundation aims to reduce the burden of multiple hours spent seeking care from different physician offices and hospitals, bringing an entire multidisciplinary care team with PHTS expertise under one roof. We believe that this Centers of Excellence program will provide hope for our community and will drive excellence for PHTS patient care and research. We want to thank our External Scientific Advisory Board and PTEN Italia for their support and input in the development of the Centers of Excellence program and application.
The PTEN Hamartoma Tumor Syndrome (PHTS) Foundation advocates for PHTS Patients. The Foundation provides patient support by connecting patients and researchers and fostering collaborations to advance PHTS research.
The PTEN Hamartoma Tumor Syndrome (PHTS) Foundation is a 501C3 foundation founded in December 2013. EIN 46-4279769
For more information, press only: Thomas Houser 1-256-520-8851 Tom.houser(at)whitespaceinnovations.com
To learn more about PTEN Hamartoma Tumor Syndrome visit: http://www.ptenfoundation.org
SOURCE PTEN Hamartoma Tumor Syndrome Foundation
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