NEW YORK, July 25, 2018 /PRNewswire/ -- Mission: Cure, a growing nonprofit committed to finding a cure and improving
The survey, phrased as an open dialogue with the FDA, asks patients to shed light on their symptoms and current treatment plan and to describe the aspects of the disease they find most difficult to live with. Initial analysis reveals three recurrent themes: a huge lack of understanding of pancreatitis from medical professionals, a lack of available treatments and burdensome symptoms that place a large toll on daily life.
Putting patients at the forefront of decision making has the potential to unify researchers, drug developers, and government officials with a streamlined goal of improving patient outcomes.
On the organization's progress, Co-director Linda Martin said, "With rare, stigmatized diseases like pancreatitis, patient perspectives are often neglected. We want the patients' voices to be heard, and this survey is just the beginning. As we continue to connect with and understand the patient perspective at a deeper level, we will be able to guide the industry to make meaningful choices that will have a direct impact on patients."
Mission: Cure will release a report detailing more insights gathered from the survey in the coming weeks.
About Mission: Cure
Mission: Cure was founded in 2017 as a nonprofit organization to discover life-altering therapies and bring them to patients. Mission: Cure aims to demonstrate a new, faster model for curing diseases using innovative financing based on patient outcomes. The first disease they are focusing on is chronic pancreatitis. For specific information about pancreatitis or Mission: Cure venture philanthropy opportunities, please visit www.mission-cure.org.
For all inquiries: Linda Martin, firstname.lastname@example.org, 239-297-9377, @Mission_Cure
View original content:http://www.prnewswire.com/news-releases/mission-cure-gathers-insights-from-first-pancreatitis-patient-survey-300686561.html
SOURCE Mission: Cure
Subscribe to our Free Newsletters!
Birth Control Implant is a long-acting birth control contraceptive inserted into the arm. It is a ...
Mastocytosis is a rare condition marked by accumulation of mast cells under the skin and various ...
Lusutrombopag is used to treat abnormally low platelet counts (thrombocytopenia) in adult patients ...View All