Hemophilia Federation of America Approved for a $250,000 Engagement Award for PRIDE Project

Wednesday, June 7, 2017 General News
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WASHINGTON, June 7, 2017 /PRNewswire-USNewswire/ -- A team at Hemophilia Federation of America (HFA) has been approved for

a $250,000 funding award through the Eugene Washington PCORI Engagement Awards program, an initiative of the Patient-Centered Outcomes Research Institute (PCORI). The funds will support the Patient-centered Research for
Innovation, Development, and Education
(PRIDE) Project via training and education of bleeding disorder community stakeholders in patient centered outcomes research (PCOR) and comparative effectiveness research (CER).

Wendy E. Owens, Director of Research, will lead the engagement project at HFA. The project will use a blended learning method, which includes in-person trainings, online education, and print resources, to train bleeding disorders community stakeholders in PCOR and CER. The PRIDE Project will provide knowledge, tools, and connections to facilitate discussions and planning among researchers and stakeholders for future PCOR and CER initiatives.

"The PRIDE Project will be the catalyst for increasing PCOR and CER within the bleeding disorders community," Owens said. "Patients and caregivers drive our research agenda and we want their voices heard by the larger research community, too. Our long-term objective is to accelerate the paradigm shift to patient-centered care, treatment, and research by training our stakeholders to participate in research in meaningful ways. PRIDE Project training will result in capable and confident lifelong PCOR and CER participants who have a positive impact on those with bleeding disorders."

The PRIDE Project is part of a portfolio of projects that PCORI has funded to help develop a community of patients and other healthcare stakeholders who have the knowledge, skills, and partnerships to participate in and advance patient-centered outcomes research and patient-centered comparative effectiveness research.

"This project was selected for PCORI Engagement Award funding for its commitment to improving the capacity for patients and other stakeholders to engage in patient-centered research and its potential to increase the usefulness and trustworthiness of the research PCORI funds," said Jean Slutsky, PCORI's Chief Engagement and Dissemination Officer. "We look forward to following the project's progress and working with HFA to share the results."

HFA's PRIDE Project and the other projects approved for funding by the PCORI Engagement Award Program were selected through a highly competitive review process in which applications were assessed for their ability to meet PCORI's engagement goals and objectives, as well as program criteria. For more information about PCORI's funding to support engagement efforts, visit http://www.pcori.org/content/eugene-washington-pcori-engagement-awards/.

PCORI is an independent, non-profit organization authorized by Congress in 2010 to fund comparative effectiveness research that will provide patients, their caregivers, and clinicians with the evidence needed to make better-informed health and healthcare decisions. PCORI is committed to seeking input from a broad range of stakeholders to guide its work.

Media Contact: Sonji Wilkes202-675-6984info@hemophiliafed.org

To view the original version on PR Newswire, visit:http://www.prnewswire.com/news-releases/hemophilia-federation-of-america-approved-for-a-250000-engagement-award-for-pride-project-300469982.html

SOURCE Hemophilia Federation of America (HFA)


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