Groundbreaking Cure HHT App for iOS, "My HHT Tracker" Released for Rare Hereditary Disease

Thursday, October 4, 2018 Genetics & Stem Cells News
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Cure HHT, the international advocacy organization for those with HHT have released MY HHT Tracker

MONKTON, Md., Oct. 4, 2018 /PRNewswire-PRWeb/ -- Cure HHT, the international advocacy organization for people with the

rare hereditary disease HHT has released My HHT Tracker, a free English language App for iOS for patients. Visit for more information, and a How-To video.

HHT (Hereditary Hemorrhagic Telangiectasia) is a cruel and unrelenting disease, affecting families for generations. Only 10% of the people who have HHT are aware of it. The most common symptom is frequent nosebleeds, but it can have severe consequences such as a stroke or death if not managed properly. Those who are unaware they have HHT are at risks for dangerous complications. The disease is just as common as ALS, also called Lou Gehrig's disease, but not as well known and difficult to diagnose.

Users of the new My HHT Tracker are able to track nosebleeds, test results, manage doctor's appointments, and more. Patients are also able to upload images, record nosebleed frequency and severity, and send critical information to their doctors directly from My HHT Tracker. The information in My HHT Tracker allows users to quickly assess blood counts, iron levels, nosebleed scores, oxygen levels, and heart markers. Patients can also set up reminder notifications for future testing needs.

The initial release of My HHT Tracker is only available on the iOS platform. Depending on feedback and responses from the initial launch, Cure HHT will investigate releasing the App on the Android platform in the future. A full global launch, outside of North America, will take place about one month after the initial launch.

"2018 is the Year of Engagement and we have been thrilled to meet and engage with so many in the HHT community this past summer and spring," notes Cure HHT Executive Director Marianne S. Clancy. "We look forward to staying on the leading edge of this disease with the release of the App, our international conference, and more."

In 2018, Cure HHT celebrates twenty-six years of building awareness, educating the public, leveraging funding for research, and advocating for patients and families affected by the disease. The new App is just one of many breakthroughs in a year of vital advances as Cure HHT continues to stay on the leading edge of the disease while advancing the mission of Find Treat, and Cure. This past year also saw the largest HHT grant event of $10 million from the Department of Defense as Cure HHT continues to leverage large grants for the Young Scholars program, drug therapies, and more. A new online resource was launched to not only showcase Cure HHT's tireless work to make an impact and reach an international community, but to become an invaluable resource for those affected with the disease. In June 2019, Cure HHT is honored to host their 13th Annual International Scientific Conference, which will take place in San Juan, Puerto Rico, featuring several outstanding keynote speakers, cross-disciplinary sessions, and more.



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