EAST HANOVER, N.J., May 16, 2019 /PRNewswire/ -- Novartis today announced that five nonprofit organizations will
"People with sickle cell disease continue to face significant gaps in care which can be detrimental to their physical health and overall well-being," said Ameet Mallik, Executive Vice President and Head, US, Novartis Oncology. "Through the STEP Program, we aim to help make a difference in these patients' lives by supporting innovative programs developed by organizations in the best position to tackle these challenges."
This year's funding recipients will work to address these difficulties by encouraging self-advocacy, providing resources to help SCD patients better navigate the healthcare system, and supporting patients as they transition from pediatric to adult care. The diverse group of recipient organizations includes patient advocacy groups and research institutions, representing the broad impact of this disease.
The organizations and innovative SCD initiatives include:
Proposals were evaluated by an external review committee made up of experts in the fields of advocacy, psycho-social support and multi-cultural health, as well as an SCD practitioner and patient.
"The volume, breadth and quality of the proposals we received this year speaks to the deep need within this community to remove the hurdles people with sickle cell disease face every day," said Charles Jonassaint, PhD, MHS, Assistant Professor of Medicine, Social Work, and Clinical & Translational Sciences at University of Pittsburgh and a member of the STEP Program external review committee. "It was inspiring to see the passion of so many organizations dedicated to improving the lives of those impacted by the disease, and on behalf of the entire review committee, we congratulate the five recipients. We look forward to seeing the impact their initiatives have on the lives of patients and their families."
SCD is a genetic blood disorder that causes ongoing damage to blood vessels and organs1. It is a lifelong illness that places a physical and emotional burden on patients and their families as they manage issues dealing with work, school and family.
Novartis is reimagining medicine to improve and extend people's lives. As a leading global medicines company, we use innovative science and digital technologies to create transformative treatments in areas of great medical need. In our quest to find new medicines, we consistently rank among the world's top companies investing in research and development. Novartis products reach more than 750 million people globally and we are finding innovative ways to expand access to our latest treatments. About 105,000 people of nearly 140 nationalities work at Novartis around the world. Novartis Pharmaceuticals Corporation, a US affiliate of Novartis, is located in East Hanover, NJ. Find out more at www.novartis.com.
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