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Cystic Fibrosis - Symptoms - CFTR mutation - Diagnosis - Treatment - Prognosis
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Support Groups |
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Seeking help from a professional counselor might also be a good idea. It is considered very useful to learn about the disease and to be aware of the methods that might help in living with it. Here are a few tips that would help a person to cope with CF:- • Monitoring by an expert team at least once in 3 months is mandatory • Take a balanced diet that includes fruits, veggies and grains • Exercise regularly. Do chest therapy as directed • Drink plenty of fluids • Avoid smoking/excessive alcohol • Wash hands to control infections • Take medications and high- salt diet as prescribed by the doctor • Normal sex is possible but infertility may be a problem. Consult a doctor if pregnancy is planned. Several ART techniques are available that may help a person with CF. • Consult a doctor if you have the following signs:- • Persisting Fever • Blood in the mucus • Increased quantity of mucus • Change in the color / consistency of mucus. • Decreased appetite • Feeling extreme tiredness • Dark green vomit • Severe constipation / diarrhea • Severe abdominal pain Please remember that people with CF can lead normal lives if they lead a lifestyle best suited for them and follow the advice of their health- care providers. Joining a patient support group may help to provide emotional support to a person living with cystic fibrosis, ease their anxieties and offer relief to their well-founded fears. Never forget to lend support to a loved one with CF. They really need it! |
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Posted by:
prema
Posted on: 12/20/2009 Cystic fibrosis in India is rare. Also there is less awareness among medical staff. Apparently frequency of common mutation F508del in Indian children is between 19% and 34%. The cystic fibrosis wordlwide is willing to fund projects for two years in India. There is an appeal on thier site - just google cystic fibrosis wordlwide india and see the response. |
http://jama.ama-assn.org