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Amyotrophic Lateral Sclerosis (ALS) - Support Groups
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Amyotrophic Lateral Sclerosis (ALS)
Drugs For Amyotrophic Lateral Sclerosis (ALS)
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Amyotrophic Lateral Sclerosis (ALS) - Lou Gehrig's disease - Symptoms - Diagnosis - Treatment
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ALS is a crippling and progressively debilitating condition. disease. An ALS diagnosis is bound to upset and even depress any individual. It is also very upsetting for the family of the diagnosed individual. It would be appropriate for them to join a support group in order for them to interact react with individuals in similar situations, to learn from them and to share their problems. How Can I Help Research? If you suffer from ALS or any other neurological disorders and if you harbor the desire to help ALS research then you have a chance. The National Institute of Neurological Disorders and Stroke (NINDS) which also supports Human Brain and Spinal Fluid Resource Center in Los Angeles is s a tissue bank that supplies researchers around the world with tissues from patients suffering from neurological and other disorders. Tissues from ALS individuals is required as raw material for scientists to study this condition in depth. Interested donors may contact: Human Brain and Spinal Fluid Resource Center Neurology Research (127A) W. Los Angeles Healthcare Center 11301 Wilshire Blvd. Bldg. 212 Los Angeles, CA 90073 310-268-3536 24-hour pager: 310-636-5199 Email: RMNbbank@ucla.edu http://www.loni.ucla.edu/~nnrsb/NNRSB More Info For more information on the research programs funded by NINDS kindly contact the Institute's Brain Resources and Information Network (BRAIN) at: BRAIN P.O. Box 5801 Bethesda, MD 20824 (800) 352-9424 http://www.ninds.nih.gov Information also is available from the following organizations:
Organizational Resources: The ALS Association 27001 Agoura Road, Suite 250 Calabasas Hills, CA 91301 Toll-free Information and Referral Service - (800) 782-4747 Phone (818) 880-9007 Fax (818) 880-9006 E-mail: alsinfo@alsa-national.org Web site: www.alsa.org National Family Caregivers Association 10400 Connecticut Avenue, Suite 500 Kensington, MD 20895-3944 Phone (301) 942-6430 (800) 896-3650 Fax (301) 942-2302 E-mail: info@nfcacares.org Web site: www.nfcacares.org National Alliance for Caregiving 4720 Montgomery Lane, Suite 642 Bethesda, MD 20814 Phone (301) 718-8444 Fax (301) 652-7711 E-mail: info.nac@erols.com Web site: www.caregiving.org Family Caregiver Alliance 690 Market Street, Suite 600 San Francisco, CA 94104 Phone (415) 434-3388 (800) 445-8106 (in California) Fax (415) 434-3508 E-mail: info@caregiver.org Web site: www.caregiver.org Other Web sites CareGuide www.careguide.com Empowering Caregivers www.care-givers.com ElderCare Online www.ec-online.net Share the Care www.sharethecare.org Today's Caregiver Online www.caregiver.com |
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Posted by:
Andrea59
Posted on: 11/09/2012 Are there any new treatments for Als?
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Posted by:
hopeforjoy(Guest)
Posted on: 10/31/2011 My dearest friend, Joy Styles, died from ALS on July 1st 2011. She was only 52. She was running half marathons and was very active when she noticed an atrophy in her left and and a weakness in her right leg. I have created a website in her name http://www.hopeforjoy.ca that is about her and has useful information about the disease. I wish I could do more, but every little bit helps. God bless everyone who has had experience with this terrible disease.
Posted by:
Doctor_Lilly(Guest)
Posted on: 09/19/2011 My symptoms started off with extreme muscle spasms and cramps. It would get worse when I was on my monthly. I was walking and running at the time to lose some weight that I thought was causing the muscle aches, headaches, and the pain that I was feeling in my whole body. One day it got overwhelming. It was August 17th, 2007. I felt like I was getting the life squeezed out of me and my mind was racing the whole time while experiencing difficulty speaking, walking, and trying to control the jerky movements. I was admitted as a psychiatric patient at that time, now it's been two years later and I feel like I am disseminating. I had another attack recently and that is what scared me enough to go to the neurologist. I am still afraid. I want to see it, and I'm interested in the damage that my body has endured. Can't wait to start treatment.
Findyourdrug.com
Posted by:
maltese(Guest)
Posted on: 08/18/2010 is there any connection between injections, dentistry and ALS? my mothers first symtoms began a month after the dentist!
Posted by:
Ajit52(Guest)
Posted on: 09/11/2012 May be due to mercury toxicity as mercury is used in filling teeth. Use [abuse] of pain killers are also responsible for ALS. My sister is also suffering from bulber palasy and has been on ventilatory support since March last year. Her symptons started after visiting dentist. |
