Medindia » Consumer Health » Health Information » Pierre Robin Syndrome - FAQs

Pierre Robin Syndrome / Bird Facies

FAQs

RSS Feeds   Text 
Which doctor should I see if my child has a very small lower jaw?
If your child has a very small lower jaw, it is very likely that there are some other associated malformations as well. You need to see an oral surgeon first, who will then direct you to other doctors depending on the severity of the condition.

How will I know if my child has heart problems as well?
You will be referred to a cardiologist if any heart disease symptoms are detected during the initial examination.

My child was intubated because of sever airway obstruction. How long will it be necessary for the tube to remain in place?
Generally, the growth of the lower jaw must be triggered during the first 12 months of life. If the doctor judges that enough space has been created for the tongue, then the tube may be removed.

What are the chances of my second child being affected by the condition?
Pierre-Robin syndrome is an autosomal recessive disorder. However, it does not necessarily affect all the newborns. One needs to go in for genetic counseling to be absolutely sure.


Share it!
Comment & Contribute
Comments should be on the topic and should not be abusive. Comments are normally moderated and are reviewed after they are posted.
* Your comment can be maximum of 2500 characters

Notify me when reply is posted
I agree to the terms and conditions
  
If you have a question about health related issues, you can now post it in our Ask An Expert section on our community website Medwonders.com and get answers from our panel of experts.
Posted by:  Ali_xpire  Posted on: 10/27/2011
my son age 14 months have a hole in his mouth upper roof please tell me there is any medicine for him or surgery is only solution



Posted by:  Komael_Husaini(Guest)  Posted on: 08/29/2009
Could anyone tell me that if I go for a cleft palate surgery at the age of 25 , then what will be the possibility of success.Also I want to tell you that because of my speech defect, I want to go for this operation.


Posted by:  guest  Posted on: 05/09/2010
I would do it. Go to a dr specializing in this. Both my sons had theirs repaired and it worked wonderful! A doctor that does this all the time can tell you if there is a good possibility of it working.




Posted by:  tinagln(Guest)  Posted on: 05/08/2009
Please advice
on the effect of Pierre Robin Syndrome long term
Eyes, Fine Motor skills, surgery carried out later for speech
any advice appriciated



Posted by:  pharyngeal flap surgery for speech improvment(Guest)  Posted on: 12/13/2008
could any one advice of how a person is after having pharyngeal flap surgery for speech, soreness, eating, breathing etc any information appriciated


Posted by:  guest  Posted on: 05/09/2010
I did the surgery on my son, If I could turn back time, I would have not done the surgery. He has extra saliva all the time now and possibly sleep apnia [sorry probably spelt that wrong]. Yes his speech got a little better, but not worth it.




Posted by:  can you help(Guest)  Posted on: 12/13/2008
could you advice does children with prs have poor motor skills example handwriting, and problems with their feet and eyes, is their any pierre robin syndrome have any defects in later life and depression / suken chest due to breathing problems as child, what is the long term effects to kids from 5 years on




X
Related Links
Cleft Lip Repair - Animation
Multifactorial Birth Defects
Tongue Abnormalities
Genetic Counseling
Citing this Health Article
The information on Medindia is factual, unbiased and authentic. If you find the content useful - PLEASE INCLUDE A LINK TO THIS PAGE.

Highlight the text, right-click, and select “copy”. Paste the link into your website, email, or any other HTML document.

News on Pierre Robin Syndrome
* Association Between Genetic Defect and Heart Malformation
* Mouse Model Gets Genetically Corrected Cleft Lip
* Scientists Understand Gene Mutation Behind Cleft Palate Development
* US Woman With Genetic Defect Looking For Healthcare Husband
* Understanding Genetic Defect in Myotonic Muscular Dystrophy
Total News Item 25
Are you a member of Facebook? Become a fan of Medindia and get breaking news delivered to your Facebook page.