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Myotonic Dystrophy

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Treatment of Myotonic Muscular Dystrophy

 Although myotonic dystrophy cannot be cured, treatment directed at providing symptomatic relief to affected patients can be given.

 Mild cases of myotonic dystrophy do not require any treatment.

 More severe cases might demand treatment with quinine, phenytoin and other similar anticonvulsant drugs. Treatment is directed at providing symptomatic relief to affected patients.

 Muscle function may be preserved to some extent with rehabilitation therapy or physical therapy. Such forms of treatment can preserve muscle strength and flexibility.

 Patients may be provided with canes, ankle and wrist braces, or other supportive devices.

 Patients with cardiac and respiratory problems can be treated using a cardiac pacemaker and ventilator respectively.

 Urging the patient to indulge in a high fiber diet can prevent constipation.

Cataract surgery in the form of lens replacement may be done to improve the vision of affected patients.

Occupational therapy can help the patient find alternatives to loss of muscle strength and dexterity and can ensure restoration of functionality of the affected patient to the maximum possible extent.

A speech and language specialist can provide assistance in coherent speech and swallowing food.

Pregnant women with myotonic dystrophy should be closely monitored during pregnancy to avoid any complications during pregnancy, labor or delivery.

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New to this site. Been diagnosed with mynotonic dystrophy at the age of 10. I was born with this. I was told it hasnt progressed any since the age of 10 but, why do i find it difficult to do the things i used to do? I used to be able to walk long distances, run, excercise. Now at the age of almost 32, i find it extremely difficult to do those things. I can walk but have to stop for frequent breaks. I cant run anymore, nor excericse like i used to. If it hasnt progressed any, why am i having so much trouble doing the things i used to do?
vicky1181 Thursday, July 11, 2013
My wife had been diagnosed with MD, we are in Delhi and not been able to locate a proper doctor. I will be grateful if somebody can refer a competent doctor to us. I also will be obliged if somebody can guide me if my kids 12 yrs and 4 yrs need a genetic screening
Iqbal_Hussain Saturday, June 22, 2013
My husband has Myotonic Dystrophy and finds cycling and swimming a lot easier than walking. The cycling he likes better due to his feet and ankles hurting when walking. The swimming was adviced by his doctor as this works most of the body and he is not straining himself.
Emmab Wednesday, April 13, 2011
New to the site: Was told I have it about 6 weeks ago don't know which type yet. was hoping to find out about pain manament as somedays are better than others.It seem to be worst in cold or hot weather the amount of pain is incressed.I walk everyday because I have a little dog and he make me go which is a good thing and it makes it enjoyable.
R-Hughes Monday, April 04, 2011
New to this site. 5 adult daughters with Myotonic Dystrophy. one daughter wants to exercise by walking, but arms and shoulders become 'heavy' and walking not pleasurable. Any suggestions for her?
kathy6 Friday, February 19, 2010

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