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Myotonic Dystrophy

Treatment of Myotonic Muscular Dystrophy

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 Although myotonic dystrophy cannot be cured, treatment directed at providing symptomatic relief to affected patients can be given.

 Mild cases of myotonic dystrophy do not require any treatment.

 More severe cases might demand treatment with quinine, phenytoin and other similar anticonvulsant drugs. Treatment is directed at providing symptomatic relief to affected patients.

 Muscle function may be preserved to some extent with rehabilitation therapy or physical therapy. Such forms of treatment can preserve muscle strength and flexibility.

 Patients may be provided with canes, ankle and wrist braces, or other supportive devices.

 Patients with cardiac and respiratory problems can be treated using a cardiac pacemaker and ventilator respectively.

 Urging the patient to indulge in a high fiber diet can prevent constipation.

Cataract surgery in the form of lens replacement may be done to improve the vision of affected patients.

Occupational therapy can help the patient find alternatives to loss of muscle strength and dexterity and can ensure restoration of functionality of the affected patient to the maximum possible extent.

A speech and language specialist can provide assistance in coherent speech and swallowing food.

Pregnant women with myotonic dystrophy should be closely monitored during pregnancy to avoid any complications during pregnancy, labor or delivery.

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Posted by:  Emmab  Posted on: 04/13/2011
My husband has Myotonic Dystrophy and finds cycling and swimming a lot easier than walking. The cycling he likes better due to his feet and ankles hurting when walking. The swimming was adviced by his doctor as this works most of the body and he is not straining himself.



Posted by:  R-Hughes  Posted on: 04/04/2011
New to the site: Was told I have it about 6 weeks ago don't know which type yet. was hoping to find out about pain manament as somedays are better than others.It seem to be worst in cold or hot weather the amount of pain is incressed.I walk everyday because I have a little dog and he make me go which is a good thing and it makes it enjoyable.



Posted by:  kathy6  Posted on: 02/19/2010
New to this site. 5 adult daughters with Myotonic Dystrophy. one daughter wants to exercise by walking, but arms and shoulders become 'heavy' and walking not pleasurable. Any suggestions for her?




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