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Acromegaly
Drugs For Acromegaly
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Acromegaly | |
Acromegaly - Signs & symptoms |
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The physical characteristics of Acromegaly typically develop very slowly over several decades. Symptoms vary depending on how long the patient has had the disease. The following are the most common symptoms:  Soft tissue swelling of the hands and feet Protruding jaw Enlarged lips, nose and tongue Voice deepening Snoring Joint pain Headache Fatigue and weakness Excessive sweating and body odor Loss of vision Enlarged hands and feet Enlarged body organs including liver, spleen, kidney and heart Irregular menstrual cycle and breast discharge in women Impotence in men |
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Posted by:
JonDanzig
Posted on: 09/11/2011 Readers may also be interested to read my summary about the latest guidelines for acromegaly. http://doiop.com/AcromegalyGuidelines
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Posted by:
Kayla-S-M(Guest)
Posted on: 05/28/2010 I was diagnosed with a pituitary tumor in 2005. It was a late stage macroadenoma. I have had surgery, gamma knife radiation and I have had 2 years of sandostatin. I still never feel good. I have lots of fatigue, muscle weakness and I take a lot of medicine. Can anyone give me any good news on this. My email address is triplejent@hotmail.com. I would love to hear from some other acromegaly patients to hear their stories. Mine has been a nightmare. I was sick and not feeling well for quite sometime, fatigue like no other actually exhaustion to where I was nauseated and sometimes vomiting when I got home from work. Finally told my husband that I either had something wrong with my heart or I had cancer. I was having a lot of palpitations and chest pain so I was sent to a cardiologist my first go around and they didn't pick up on it was going to ablate the areas on my heart that were beating irraticaly. I just need to hear someone elses story. Please email me. Thank you. Kayla
Posted by:
smurff
Posted on: 06/26/2010 hi Kayla, i too had a macroadenoma which was removed in 06 but did not need drugs however i too have profound fatigue and do not feel good at all. I now have bad joints everywhere and have had 3 total knee replacements and have also got Parkinson's disease. My quality of life is doing down the slippery slope. I am under so many specialists but none seem really interested. It is a lonely battle to get well and sometimes i wonder if i ever will but will not give up! good luck. Where do you live? snurff |
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