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Multiple sclerosis - Symptoms - Causes - Diagnosis - Treatment

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 Multiple Sclerosis - Support Groups

AUSTRALIA


MS Society of Queensland
286 Gladstone Road
DUTTON PARK QLD 4102
Postal Address:
Locked Bag 370
COORPAROO DC QLD 4151
Telephone: (07) 3840 0888
Fax: (07) 3840 0813
Email: mssociety@msqld.org.au
http://www.msaustralia.org.au

Multiple Sclerosis Society of the ACT
Gloria McKerrow House
117, Denison Street
Deakin ACT 2600
Australia
Phone: (02) 6285 2999 (Local)
+61 2 6285 2999 (International)
Fax: (02) 6281 0817 (Local)
+61 2 6281 0817 (International)
E-mail: admin@ms.org.au.
http://www.ms.org.au/

MS Australia
PO Box 210, Lidcombe NSW 1825
PH: 02 9646 0600 FAX: 02 9646 0675
WEB Site: www.msaustralia.org.au

Multiple Sclerosis Research Australia Limited
PO Box 1246, Chatswood NSW 2057
PH: 02 9411 7811 FAX: 02 9411 7456
WEB Site: www.msra.org.au

Multiple Sclerosis Limited (NSW & Vic.)
54 Railway Road, Blackburn VIC 3130 (Registered Office)
PH: 03 9845 2700 FAX: 03 9845 2888
NSW: PO Box 210, Lidcombe NSW 1825
PH: 02 9646 0600 FAX: 02 9646 0675
http://mssociety.org.au/

MS South Australia/Northern Territory
PO Box 198, Greenacres SA 5086
PH: 08 8360 0800 FAX: 08 8360 0899

MS Tasmania
15 Princes Street (Locked Bag 4), Sandy Bay TAS 7005
PH: 03 6224 4111 FAX: 03 6224 4222

MS Western Australia
Locked Bag 2, Bentley Delivery Centre, Bentley WA 6983
PH: 08 9365 4888 FAX: 08 9451 4453
multiple@multiple-wa.asn.au
http://www.multiple-wa.asn.au/

The Brain Foundation
National and New South Wales Office
Gerald Edmunds, National Executive Director
Tel: + 61 2 9437 5967
Fax: + 61 2 9437 5978
Email: info@brainaustralia.org.au
Website: www.brainaustralia.org.au
P O Box 579, Crows Nest, NSW 1585
Suite 21, Regent House, 37-43 Alexander Street, Crows Nest, NSW 2065

Brain Foundation Victoria Ltd
Tel: + 61 3 9905 3950
Fax: + 61 3 9905 3948
Email: brain.foundation.spppm@med.monash.edu.au
Website: www.brainfoundation.org.au

C/o School of Psychology, Psychiatry and Psychological Medicine, Level 4, Building
17 Monash University CLAYTON VIC 3800
President: Associate Professor Stephen Robinson

Brain Foundation South Australia
Tel: +61 8 8223 3758
Fax: +61 8 8224 0988
Email: brainfdn@tpg.com.au
Website: as National
250 Flinders Street, Adelaide, South Australia, 5000
Lisa Taplin, South Australian Executive Director

Brain Foundation Tasmania
Tel: + 61 3 6231 4424
Fax: + 61 3 6234 3442
Email: connie@brainaustralia.org.au
Industry House, 30 Burnett Street, North Hobart, 7002
PO Box 527, North Hobart, 7002
Connie Digolis. Manager, Tasmania

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hii, Me interested in seeking hsct[stem cell transplant] from India.me with rrms 5years post disease activity.Any one who has ms in India would be pyscological help for me.Please responds. Regards shaik
shaik92 Monday, March 25, 2013
Chronic cerebrospinal venous insufficiency [CCSVI], or the pathological restriction of venous vessel discharge from the CNS has been proposed by Zamboni, et al, as having a correlative relationship to Multiple Sclerosis. From a clinical perspective, it has been demonstrated that the narrowed jugular veins in an MS patient, once widened, do affect the presenting symptoms of MS and the overall health of the patient. It has also been noted that these same veins once treated, restenose after a time in the majority of cases. Why the veins restenose is speculative. One insight, developed through practical observation, suggests that there are gaps in the therapy protocol as it is currently practiced. In general, CCSVI therapy has focused on directly treating the venous system and the stenosed veins. Several other factors that would naturally affect vein recovery have received much less consideration. As to treatment for CCSVI, it should be noted that no meaningful aftercare protocol based on evidence has been considered by the main proponents of the ‘liberation’ therapy (neck venoplasty). In fact, in all of the clinics or hospitals examined for this study, patients weren’t required to stay in the clinical setting any longer than a few hours post-procedure in most cases. Even though it has been observed to be therapeutically useful by some of the main early practitioners of the ‘liberation’ therapy, follow-up, supportive care for recovering patients post-operatively has not seriously been considered to be part of the treatment protocol. To date, follow-up care has primarily centered on when vein re-imaging should be done post-venoplasty. The fact is, by that time, most patients have restenosed (or partially restenosed) and the follow-up Doppler testing is simply detecting restenosis and retrograde flow in veins that are very much deteriorated due to scarring left by the initial procedure. This article discusses a variable approach as to a combination of safe and effective interventional therapies that have been observed to result in enduring venous drainage of the CNS to offset the destructive effects of inflammation and neurodegeneration, and to regenerate disease damaged tissue.
LeoVoisey Friday, August 03, 2012
I've was diagnosed with primary progressive ms last week. I've. Had no remissions at all I just get worse. I walk with crutches and suffer extreme exhaustion. I'm currently on a 5 day course of methylphenidate 500mg. I'm fed up of people saying think positively . I can think of nothing to be positive about. My old life has gone and I can't accept this new life. Infant it's not a life it's and existence . I feel a burden to my fiancé and extremely guilty to my children. I have a 5 moth grandson who I can no longer pick up. I'm so so sad. No one understands. My whole family is distraught and I blame myself. I think they'll all be better off without me. Does anybody understand or am I being selfish?
Emma1968 Tuesday, July 31, 2012
I am so sorry you feel that way. I too have MS and have been devastated emotionally by the burden but things will change as they always do, so you need to ride the roller coaster for as long as life lets you. No one is ever better off without someone they love!
BellaLuna Wednesday, September 26, 2012
Will the person suffering from this disease has to take the medicines whole life.
Nandinin Sunday, February 26, 2012
Depends on the medication. Some are having so many side effects that it is not possible to take more than 2 years. But you can be out of it, especially if you are young and in the initial stage, and this without any unwanted side effects.

It is a disease for the whole life, but the treatments are not available, until you search in the right direction for it. It can be cured, as I know a few from them.

Adriana Sunday, February 26, 2012
I am currently in limbo being tested for MS. I had a brain MRI in April that showed multiple [non-specific]white matter lesions in the sub cortical areas. I have a spinal MRI booked in October. A bit of history: In 2001, I woke up in the middle of the night tried to roll over and couldn't because my right side was numb. By morning I had some feeling and movement back but the side was still week and tingly. Dr ordered a CT scan and said there were no signs of stroke but definitly something neurological. It was left at that. In 2006, I started getting a burning/ tingling feeling in the back of my legs. I had moved so I had a different dr he figured it was sciatica. This would come and go lasting anywhere from a few hours to a week at a time. In 2009, I started having numbness in my toes. It went downhill from there. While camping one day I had a reaction to heat from the sun. My hands and feet started to feel like they were burning. We were at a lake and I had to go sit in the shade. Over the course of the day it got more intense and I started getting weird sensations in my arms electic type pains and even the feeling as if someone was flicking water on my arms. The pain continued to intensify and by the end of the day I could hardly bend my fingers. This lasted 3 days it hurt so bad I even slept on the floor with my hands over the air conditioner. For the next four months I felt aweful. Weak, tired, could hardly walk up the stairs. Pain in my legs especially at night. Pain in my jaw/throaght, headaches, ears ringing,dizzy spells, numbness and tingling. the dr tested me for lupus twice, diabetes twice, porphiria and did like a hundred blood tests all came up negative. I moved back to the town I lived in before a short while later. I felt great for about a year and a half then all of a sudden I started getting the leg pain again. I also started getting tingling and numbness and twitching in my face and eye. My feet and wrists started hurting and going numb, blurry vision in my eye never lasting more then a minute, chest pains, weakness, bladder issues and the scariest was when my legs went numb from the knees to my toes (lasted about 5 hours). It is to the point I had to stop working until they figure out whats going on and treat it. My doc is unsure as to what further testing should be done. Any suggestions or advice is welcomed.
limboland Saturday, September 03, 2011
Hi Fisher,

that is right, the warm or hot weather is affecting and worsening the disease. You have to protect yourself agains it. There are many other things what you ca do.
My friend is a doctor, so if you want I can give you in details the informations you need.

Adriana Friday, October 08, 2010
hi my name is dale hormuth i am 22 years old and was diegnosed with MS on may 29 of 2010 i have no clue how to deal with this so plz e mail me at acecoolcat@yahoo.com plz i would like to talk to someone about it
Dale_Hormuth Thursday, August 19, 2010
Hi Dale, I tried to contact you on your email but I could nor reach you. You can write to me one email on: helpforms@gmail.com You can do may things, since you are you young and in the initial stage. Just write me back... Take care
Adriana Sunday, February 26, 2012
I have had MS for the past 10 yrs & the attacks have repeated for 6 times. Everytime I was given steroids (methyleprednisolone)which helped me to recover. Two weeks back I started Betaseron, so its too early to say how it will effect me !
vg712 Saturday, November 21, 2009
i am a suffer of m.s. when i am in the sun i start to dizzy and feel lighthead, i wat to know if the sun could make the disease worse or is it in my imagination.could anybody give me some advice thanks
fisher Monday, June 01, 2009
My mom has ms and is very affected when she overheats. When outside she trys to stay cool by staying out of the sun. My understanding of ms is that the central nervous system is compromised, when we overheat and become dehydrated our central nervous system is affected. She exercises by swimming in a pool so she can stay cool. Hope this helps
guest Wednesday, November 11, 2009
HELLO, THERE ARE COOLING VESTS THAT WILL HELP BUT YOU NEED D3 - RIGHT NOW I AM ON 50,000 UNIT EACH WEEK. GET YOUR LWEVEL CHECKED AND STAY COOL ALSO ENTER RECIPES IN MY COOKBOOK I AM DOING WWW.TYPENSAVE.COM I CAN SEND YOU MORE INFO, SEND ME ADDY I HAVE PROGRESSIVE RELAPSING MS.
wheelchairgranny Thursday, July 01, 2010
Is there 29 different meds that are taken all at once every morning for MS plus an injection,plus still having the pain 24/7 and stll be able able to run walk and funktion normaly?And be at level 10
jo612 Wednesday, April 08, 2009

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Multiple Sclerosis - About