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| Disease Info Index | ||||||||||||||||||||||||||
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Muscular Dystrophy
Drugs For Muscular Dystrophy
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Muscular Dystrophy / Duchenne Muscular Dystrophy | |
Frequently Asked Questions |
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A child specialist should first be consulted, however for long term management many a team of doctors including physiotherapist, chest specialist, orthopedicians are required. What is the prognosis of DMD? DMD is a progressive disorder and the patient usually dies before age 25. Can DMD be prevented? DMD is a genetic disorder. There are no tests to detect DMD in a child before birth. However, genetic counseling helps in the identification of at risk families. When does a doctor suspect Duchenne Dystrophy (DMD)? DMD is suspected when boys present with walking difficulties usually around the age of 2 or 3 years. |
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Posted by:
ppragnesh
Posted on: 12/21/2011 Hello All, My son is also suffering with DMD. Does anyone get a proper guidance to fight against this diseases. If someone seriously got something please share with everybody. It will be a very good help to all those parents and patients who suffers lot.
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Posted by:
Mido-93
Posted on: 10/01/2011 Hi , I'm Dr Menat Allah . My son is suffering from DMD and now he is on a wheel chair . He is 13 years old . if the exon skipping therapy gives good results and is suitable for my son , please inform me and Iwould ask you is this therapy for all the mutations taking place in DMD or for specific types only .
N.B : If there any new medication other than gene therapy , Please don't foreget me . please give me an E-mail to contact you .
Posted by:
JNRCBE
Posted on: 09/15/2011 Hi,
My friend's only son, 7 years old is having DMD.We are from Coimbatore. Is there any way to cure him. Kindly reply
Posted by:
Arvind_cbe
Posted on: 12/17/2011 Hai,We are also from Coimbatore. My son is also facing same problem 6 yr. If you have solution pl inform me too.
Posted by:
Arvind_cbe
Posted on: 01/30/2012 Hi, Thanks for the details can you please give Tirnelveli contact details, which may help for my son.
Posted by:
mdfindia
Posted on: 03/23/2012 Dear Arvind, We are dealing with hundreds of DMD children. We have cases, of broken ball and socket knee joint just because of the traction given at Tirunelveli treatment. Now the child is living with the unbearable pain because the ortho doctors said, it cannot be operated for DMD children. Be careful. Atleast the child will be living without any added pain if not given any wrong treatment. After you return from the centre within 2 to 3 months DMD children's health become worse than before going to the centre. There are so many centres like mushroom at Tirunelveli, which claim that they show improvement. But it is false. Personally visit DMD children who return from there and check whether the improvement is sustainable for years together. To my knowledge none is there. Am also a mother of a DMD child who passed away at the age of 17 yrs, 5 months. This is my concern for the DMD children. We are working for muscular dystrophy community. Please visit www.mdfindia.org |
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Posted by:
sinoby(Guest)
Posted on: 08/17/2011 dear all, My son is suffering from DMD from last year. He is now 5 years. Please help me how can I take care of my SON. I pray to GOD,is there any medicine for this.pls give me reply .................
Posted by:
sharanjeet
Posted on: 08/28/2011 If you are on facebook, we are puting a group together,here in Miami, FL, as to what can be done to help with kids with this problem. Please send me an invitation Sharan_kaur@yahoo.com on facebook and I will do all I cna help!
Posted by:
mdfindia
Posted on: 03/29/2012 Dear Sinoby, It is difficult to digest having a son with DMD. Your son is just 5 years. Give him proper physiotherapy exclusively designed for DMD children. Hopes are there to get the medicine within a few years. may be 2-3. Maintain you son's posture and never worry about the negative side. Let GOD bless your family. |
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Posted by:
deepak45(Guest)
Posted on: 06/21/2011 Dear sir,myson is suffering dmd since 8year old.Now he12,We are from mumbai. we are giveing him Acti base powder, carnitor tab 1tab aday, omino cortil 20 1st 10 days of month from last 1.1/2 year
Posted by:
mdfindia
Posted on: 03/27/2012 Mr Deepak, Omino cartil what you are giving for your son is cortico steroid tablet whose generic name is Prednisone. This tablet is being used in developed countaries for DMD children whose side effect is nullified by the systematic pattern of exercises and diet. But we don't have such care and support system here. So this tab might increase weight which could not be brought down at any case, we have many children of over weight due to this type of tab. Also studies show that taking this tab for longer duration will extend the walking of the child by 2-3 years, but reduce the life time by 2-3 years and has the impact of creating fracture in the vertebral column. Plz read about side effects of cortico steroid in www.mdfindia.org continue this. Even if you plan to stop, you should not stop suddenly, you have to gradually reduce the dosage and then stop. By mistake we too have given for 10 days when we diagnosed for our son at the age of 6 . But stopped when we came to know that. |
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Posted by:
veeru3456
Posted on: 05/21/2011 hiii this is veeru from hyderabad.iam suffering from muscular dystrophy since 11years.now a days lot of people were suffering with this disease.so,doctors please try to find medicine for us.otherwise we have to die |
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